Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for February 2015

And now we have Botox

Yesterday we saw our neurologist for regular quarterly visit. She asked if she could film C walking in her office and did so on her phone and sent video to...

Yesterday we saw our neurologist for regular quarterly visit. She asked if she ...

•9 years ago

Paying it forward

As a Life Coach I often run workshops at a local retreat particularly "mood board" workshops. This is where you cut pictures & words out of magazines that grab...

As a Life Coach I often run workshops at a local retreat particularly "mood boar...

•9 years ago

Mums Home

After 10 wks in hospital mum is home. As you're all aware she qualified for NHS cont care funding. She now has 2 carers 4 times a day and 1 carer overnight...

After 10 wks in hospital mum is home. As you're all aware she qualified for NHS...

•9 years ago

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Medicines

any new meds has any one been given if any wants to email m a list of meds taken and what its for i would i woul like to discss what we've tried and what we re...

any new meds has any one been given if any wants to email m a list of meds taken...

•9 years ago

hi everyone

got computer duct tape togather dont know how long it will stay hope all is well with evryone, aunt bev and i leae for UCSF friday she starts her observational...

got computer duct tape togather dont know how long it will stay hope all is well...

•9 years ago

Comfort feeding/ lcp

Can anyone tell me the difference between comfort feeding and the Liverpool care pathway or is there a difference?

Can anyone tell me the difference between comfort feeding and the Liverpool care...

•9 years ago

Happy valentines

As I was growing up I always wanted lots of cards on valentines day. As I grew older I went through the stages of being happy because I had that special person...

As I was growing up I always wanted lots of cards on valentines day. As I grew o...

•9 years ago

Outburst!

Visited Rose yesterday, she is being comfort fed now I managed to give her some tea which I did hear and see her swallow,but a few minutes later it just poured...

Visited Rose yesterday, she is being comfort fed now I managed to give her some ...

•9 years ago

its getting worse...

Dear all, simple question , how do you get to wash/shower your love ones? my mum really struggels to move my dad around.... he is getting less and less...

Dear all, simple question , how do you get to wash/shower your love ones? my mum...

•9 years ago

CHALLANGE!!!!

Hi Folks, Well, we have had our Scream Day, our Sloth Day and I for one, have spent far too many days recently, down in the dumps. Time to be positive!!!...

Hi Folks, Well, we have had our Scream Day, our Sloth Day and I for one, have s...

•9 years ago

50 years of PSP research

A few months ago (October 2014) a syllabus was drawn up to teach health professionals about PSP and the progress made in 50 years since the disease was...

A few months ago (October 2014) a syllabus was drawn up to teach health professi...

•9 years ago

Reply from social worket

Yvonneandgeorge We'll have to tell you all about my phone call to not shut George's file from the social workers who I was not able to speak to spoke to...

Yvonneandgeorge We'll have to tell you all about my phone call to not shut Geor...

Yvonneandgeorge

•9 years ago

Coming to terms with PSP

My mother who turned 70 a couple of weeks ago was diagnosed with PSP about a year ago, they reckon she's probably had it for at least 5 yrs already. She has...

My mother who turned 70 a couple of weeks ago was diagnosed with PSP about a yea...

•9 years ago

A POEM ABOUT PSP

THIS IS THE LIFE O A PERSDN WITH PSP; IT COULD BE YOU, AND IT IS ME. TO TELL THE T TRUTH I REALLY DON''T CARE,,I LEARNED TO LIVE WITH IT BUT THAT' OK. I...

THIS IS THE LIFE O A PERSDN WITH PSP; IT COULD BE YOU, AND IT IS ME. TO TELL T...

•9 years ago

GP's and consultants don't seem in any hurry!

I am a little confused as my husband, Ben's GP and neurologist don't seem in any hurry to get things underway that we will need put in place in the future. Ben...

I am a little confused as my husband, Ben's GP and neurologist don't seem in any...

•9 years ago

MY BELOVED GODMOTHer has died aged 93

i want to tell you all about my godmother JOYCE who has died in hospital aged 93 and had wanted TO GO 4 two yr s now and was v frail but she was a wonderful...

i want to tell you all about my godmother JOYCE who has died in hospital aged ...

•9 years ago

Bad day yesterday....

Yesterday was a bad day, for what was no apparent reason, I couldn't stop thinking about my Mum. Every song that came on the radio seemed to set me off, I saw...

Yesterday was a bad day, for what was no apparent reason, I couldn't stop thinki...

•9 years ago

Sad? Devastating!

Well, I have not really posted on here even though I have read all the posts for a few years now. Believe me, they have helped so much. Sometimes I read and...

Well, I have not really posted on here even though I have read all the posts for...

•9 years ago

PSP

I don't mean to be uneducated, I have parkinsons and was diagnosed jan/2014. What does PSP stand for?

I don't mean to be uneducated, I have parkinsons and was diagnosed jan/2014. Wha...

•9 years ago

Speech therapist visit.

Posted yesterday about my sister Rose being a bitchesty and doctor and speech and language came today, s&l have said Roses's swall9w is at risk and said we...

Posted yesterday about my sister Rose being a bitchesty and doctor and speech an...

•9 years ago

Cure to injury during a fall

If your loved on has been injured during a fall I have an idea that worked for my dear wife Sharyn (1947-2014). We opted to use a Transport Chair to move her...

If your loved on has been injured during a fall I have an idea that worked for m...

•9 years ago

depression or grief?

I think it is important to realize that what I feel as "depression" is better labeled as "grief". It is not a pathological state to be treated but a normal...

I think it is important to realize that what I feel as "depression" is better la...

•9 years ago

So sad

I no exactly how yu feel. Yu have to stay. Strong It's hard. But for him. Yu must What yu need is. Some respite A couple hrs. Away from yer dilemma...

I no exactly how yu feel. Yu have to stay. Strong It's hard. But for him. Y...

•9 years ago

Be the first to reply

Thanks

Hi Everyone, I have not posted much on this site , but many times it has been a godsen to me with advise, words of encouragement and knowing what to expect....

Hi Everyone, I have not posted much on this site , but many times it has been a ...

•9 years ago

Chesty cough/flemmy

My hubbi has just been diagnosed with psp hes just 38yrs old and has most symptoms,coughing and bringing up phlegm we are trying pineapple juice at the mo but...

My hubbi has just been diagnosed with psp hes just 38yrs old and has most sympto...

•9 years ago

Social worker

I was just wondering if I should accept this the social worker phoned me today to say she was closing George's file but I remember reading someone saying that...

I was just wondering if I should accept this the social worker phoned me today t...

Yvonneandgeorge

•9 years ago

Sounding chesty

Nursing home has just called me to say my sister Rose is quite chesty today and not accepting food.They have called the Doctor so just waiting to hear from...

Nursing home has just called me to say my sister Rose is quite chesty today and ...

•9 years ago

FRIENDLY PEOPLE THAT WANT TO HELP............

'M GLAD I FOUND THIS SITE. IT IS INFORMATIVE & I FEEL THAT IT IS EASY TO VENT AND UNDERSTAND HOW OTHER PSP PATIENTS ARE DEALING WITH THEIR FRIENDS AND...

'M GLAD I FOUND THIS SITE. IT IS INFORMATIVE & I FEEL THAT IT IS EASY TO VENT ...

•9 years ago

One life.. Live it

Folks - Just to say thank you for your support - You don't know how much you have helped. Mom passed away peacefully towards the end of January. She had been...

Folks - Just to say thank you for your support - You don't know how much you ha...

•9 years ago

To you all ...

This site is truly wonderful. It lets us rant and screem, gives us all the advice and support we need, and to top it all we can read wonderful words from...

This site is truly wonderful. It lets us rant and screem, gives us all the advic...

•9 years ago

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