I was just wondering if I should accept this the social worker phoned me today to say she was closing George's file but I remember reading someone saying that you should not let anyone close your file, I said to her are you closing it, George has got PSP, she said if you have a problem you can ring us if your circumstances change you can ring us. Felt a bit worried, still waiting for other referrals, seems like it is taking ages. Also have organised a private pyso to come in while we wait, hospital said he should be having pyso, feel like I am hitting my head on a brick wall, don't want to be to pushie, and keep phoning everyone which I feel like doing.
Feel like screaming out to people my husband who has worked so hard in his life has got this horrible illness, feeling useless at the moment, thinking of all the jobs I need to do, and just here feeling sorry for George, he just sits in his armchair not talking hand clenched together not talking, he keeps looking at me with sad eyes.
We are off to Devon with our daughter and granddaughter on Sunday for a week so looking forward to it, I wanted to take him back to Cyprus to his village but he just does not want to go, I think he is such a proud man, he does not want anyone to see him, I have said we don't have to go up to the village, he still does not want to go. So hopefully we will have a lovely summer and we can spend some quality time in the garden.
Sorry to go on and on but I am still feeling empty, he has been getting this muzzie head which leaves him very quiet the next day.
Love to you all I love this page so look forward to reading what you are all saying.