Remote control

[Yvonneandgeorge]

Hi everyone hope you are all having a lovely Sunday I was wondering if any ones partner loves the remote control he loves playing with eg turning it over when we are in the middle of watching a programme? Then he can't always remember how to put it back on the channel we were watching it is so frustrating. Love to you all Yvonne xxxxxx

[jillannf6]

HI YVONNE AND GEORGE

I HA VEJ JUS TLOS TMH POS T TO YOU AND WILL ATTEMPT 2 SEND IT Again

I TEND TO THROW HT ERMEOTE ON TO HTE BED OR WHEREVER AND DIRV EVMY PARFTNER MAD IWTH WOWRRY THAT I AM THROWING OTHE,R, THIGNS AS WELL IHN GTHR KITCHEN WHEN HE IS SITLL IN BED ASLEEP

LIKE THE LANDLIEN TTLEPHOEN./MHY MOBILE/ OR SOMRTHING WHICH COUDL EAISLY BREAK

LOL `JILL

HUGD AND XX TO YOU BOTH

[Rexs_daughter]

Hi Yvonne and George

Dad has the same obsession with remote controls etc - his favourite thing at the moment is the control for his rise and recline chair! He is forever pressing 'up' for a couple of seconds followed immediately by 'down' for a couple of seconds. He's been known to do this for up to an hour at a time. The chair has started creaking so much it sounds like an old ship creaking on a stormy sea! But at least he laughs when we ask if he thinks he's a pirate!

[NannaB]

Hi Yvonne, my husband would randomly press buttons on the TV remote, also turning the Channel over in the middle of a programme. For weeks we had a description of everything on TV, especially for the blind. I didn't know how he did it so we had wonderful descriptions such as...he gazed lovingly into her eyes, he fondled her breast and she closed her eyes, smiling, she raised the knife and thrust it into his back. It was funny but annoying at times. Eventually he managed to turn it off but neither of us know how. I'm in charge of the remote now as he could never get a particular channel but every time whatever he watches ends, I go to the guide, read out to him what's on and he puts his thumb up when he likes the sound of the programme.

I hope you find a solution as it is very frustrating not being able to see a programme all the way through.

X

[jzygirl]

The remotes are nowhere that Brian can get hold of them because I got fed up with having the guide on and trying to watch a programme in a little square in the top right corner of the screen because he had fallen asleep halfway through looking for something else to watch even when we was halfway through one programme. How I hated the fact he always seemed to have the control in his hand and snoring his head off. All good fun. Janexx

[MoragR in reply to jzygirl]

My father now seems to think that his call bell is his TV remote, he presses it and points it at at the TV when he doesn't like the programme - I suppose that works when the carers arrive!

[Hidden in reply to jzygirl]

LOL!! Same here!! I have tried giving my husband Greek worry beads to occupy his hands but the remote is still the favourite!!

[DenB]

The remote in our house is not something that Roy can control either. We ordered a rise and recline from DFS for him but a couple of times I came into the room after hearing him calling frantically and found him slid down onto the very end of the chair with the chair in the standing up position.It looked like one of those things in that film that turns from something like a truck into a huge robotic person...a transformer.......looming over him. He wouldn't sit in it after that so we managed to get DFS to take it back and we are now waiting for a recliner chair with just a button to press. I will just have to tell Roy not to get up from it whilst reclining unless he calls me! Fun times eh? X

[NannaB in reply to DenB]

Hi DenB. Are you in England? We had our rise recliner provided as soon as my husband was diagnosed. I came home from work to find it in place, fully reclined with him sound asleep. I didn't know we were getting it. The OT came to see him the week after diagnosis and unbeknown to me, ordered the chair, perching stool, stair rail and umpteen other things. He plays with the controls and has fun time going up and down and I have to watch him as he has slid off several times. Our grandsons also think it is fun giving grandad a ride and Colin laughs when they do. I hope you can get a chair without buying it. X

[DenB in reply to NannaB]

Morning NannaB

I am afraid my chair has already been bought and I am already paying for it.!

But there are so many things that can be learnt in terms of what help there is out there .I didn't even know in the beginning that I didn't have to buy a wheelchair but I will certainly pass all of this on to anyone else I ever come across that doesn't know!

We live in Higham which is near Rochester in Kent. Where do you live,NannaB?

Have a good day X

[NannaB in reply to DenB]

Near Tunbridge Wells, West Kent.

After the delivery of equipment, if I want something I ask the OT and usually it is provided. I recently asked if I could have a tilt and lift commode chair for our wet room as we had used one on holiday. I was thinking of buying one but they are over £1000. I was so surprised when she said she would order one for us. It is brilliant at it tilts right back so I can get to my husbands nether regions without bending too much after he has used the commode, I did buy our first wheelchair as KCC would only provide standard ones and I needed a light one to get in the back of the car and very annoyingly, I had to buy the electric wheelchair as he couldn't steer it himself. If he could, it would have been provided. We are getting back some of the NI money he paid in during 44 years of work.

Hope your day is good.

X

[msomaya in reply to NannaB]

NannaB, its so amazing that these things are done without you having to think through things. In India, the services are so pathetic, doctors don't even care to advise what precautions we could take! and imagine doctors advising that patients be tied up!! how ridiculous is that... am glad at least somewhere people are more humane...

[zjillian]

Give him a remote without the batteries in it. He can still "change channels" without you losing your show.

J.

[NannaB in reply to zjillian]

Good idea x

[Hidden]

Hi everyone

I have mentioned before my wife's inability to use items like the remote control for the TV. I do not let her use it anymore. Although she has difficulty communicating (slurred, slow, soft and incomplete speech) she has (like most PSP/CBD sufferers) a sharp mind and enjoys a good (weaker) laugh (although sometimes it is the pseudobulbar affect of excessive laughing/crying).

So today, I read out these posts on using such things as the remote control. I thought it might enlighten her as to our shared common experience, and prove I wasn't just being mean!

Well, she laughed and laughed at hearing of your experiences. It was a bit of a tonic for her as she was very "out of it" today.

(For those interested in the clinical confirmation of this symptom, with PSP and such conditions as Alzheimer's ...here is an extract about it.........

"Apraxia is a failure of the thinking parts of the brain to integrate all the information that is needed to perform previously learned motor activities. This happens even though the individual parts of the brain required to do the task may function normally. Alzheimer's disease (and PSP) affects the ability of the brain to understand how to perform motor tasks. Early in the disease, these can be complicated tasks such as hobbies that require fine motor movements. Another early manifestation of apraxia is problems with using the television remote control, or other functions that require relating numbers to activities". )

All the best

T.

[NannaB in reply to Hidden]

Thanks for that Shrelley. It's very interesting to know the reasons. It's good your wife can laugh at things put on this site. I read appropriate posts to my husband and he laughs too.

[DenB in reply to Hidden]

Thanks Strelley...We thought the posts about the remotes were funny too!

Have a good day

D

[Doglinton in reply to Hidden]

Thanks. That makes so much sense and will make Chris feel better about the many skills he has lost. We also laugh about the effects. Jean

[easterncedar]

Apraxia, is it? That does fit our experience here exactly. Thanks, Strelley. At least I can try to explain it to my dear man, who is so often frustrated by his inability to do the things he used to be so handy at. He was a biologist, and sometimes takes in a scientific explanation better than my less precise descriptions. good luck and better days to us all, Easterncedar

[Mwick175]

Apraxia . . . Seems my husband has it too. He used to be so handy at doing & fixing things around the house. Now . . . We had to call a plumber when he could not fix the toilet after 3 weeks of trying. He used to set up our Christmas tree, complete with lights, in one evening. This past Christmas it took him 4 days and it still had a few problems. He doesn't like me to call in help for household repairs or projects I can't manage, but I have to just to keep us going. I could go on, and yes the remote control, is a frustration too. So sad to see all these changes.

[nanonthenet1]

Oh, yes, remote, Central heating, radiators, but to know it's just not us is such a good thing, through this site and all the shared things, I am becoming more calm and understanding this awful thing, we too laughed at the comments, I thing laughing has to be the best medicine, love to you all xx

[Georgepa]

Bane of my life- volume up - volume down switch off at critical point- lose it altogether(fortunately I've got a secret one of my own ) Wants to watch programs which we haven't recorded yet and insists its possible- no explanation possible - watch series -not clue who is who - not sure who ends up more confused V or me .Demands I wind on the adverts on live TV and gets annoyed when I point out I can't- yes TV is an endless source of entertainment oh and not being altogether sure whether Monday is Wednesday or even Thursday if you follow me all adds to the general confusion . Still wouldn't be without it !

[jillannf6]

hu all

yoru comments on the remotes r very good - i have had a good titter to myself! and only a couple of falls so far this am \yesterday wa s a terriblle day for falling again and i e hope for better today

;ol JILL

[gypsywoman1947]

Just found your post, yes my husband hogs the remote presses buttons tries all sorts till eventually we can watch nothing or even get tv on. Then have to call someone to sort. Before this and when he was more stable he used to keep rearranging stuff in the dishwasher, I learnt to walk away . I was 40 years in catering I know how to load dishwasher but he knew best. Such a relief to read others have these problems , small in nature but so infuriating.

[Yvonneandgeorge in reply to gypsywoman1947]

Yes it is very frustrating but now he gives me the remote once he has messed up the tv and I have to try and put it right oh dear xxxx Yvonne xxxxxx