A few weeks ago I posted my concern as my husband was booked to have a swallowing video. Several kind folk here encouraged me by recounting their experiences. We have just returned from the hospital and all went extremely well. One of my concerns was that he had to hold food in his mouth while the radiographer counted to three, at which point he had to swallow. We had a rehearsal with his Ready Break and mashed banana this morning. OK, it took even longer to eat breakfast but was well worth the rehearsal. He did brilliantly at the hospital. I fed him, wearing extremely heavy protective clothing and during the count, stepped back and watched the food go down. It was so interesting and even more important, nothing went down the wrong way. I told the speech therapist I would never feed him sandwiches ( they wanted him to eat a barium sandwich, very tasty!) and suggested we break some bread off and moisten it with something. She did, I'm not sure what it was but apparently it was tasteless and he managed to chew it and swallow with no problem.
I asked her what she would be saying in the letter to us and the GP and she said the PEG is definitely not needed yet. I said that the Hospice said it should be done before it is required and she said only when swallowing started to be a problem, which it isn't now. He does choke when he goes to the Hospice so she suggested I go at a mealtime and show them how to prepare the cooked meal for eating, how much to put on the spoon and how fast to feed him. When it was over she thanked me for doing her job for her and how it made things easier as my husband was so relaxed. We celebrated by going into the hospital Costa coffee shop and treating ourselves to a very calorific cappuccino each. I did get a very funny look from a lady on an adjoining table as I added the thick and easy. From her face you would think it was heroin.