Fifteenth fall of the month this morning - poor V black and blue- thank god for the arrival of the Elk and slide sheets. There's no pattern -place or time of day or night .They are certainly getting far more frequent- even just standing with her frame is not safe any more .Don't feel comfortable leaving her for five minutes to go the local shop as she won't stay sitting until I get back .The OCD kicks in and she 's up and arranging things .What do you do ? I don't know . Georgepa
PS daughter down this weekend and they watched a program about Elvis and both drooled and dribbled over him in leather which made V laugh a lot which was lovely to hear .
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Georgepa
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I AM STILL FALLING ABOTU 14 TIMES DAILY BUT APART FORM THE BRUISE SNO INJURIES
I USE A WHEELCHAIR INSIDE AND OTU NOW AND IT HAS REDUCED THE FALLS INSIDE
I AM RESTLES SWITH THIS PSP A DN WHEN ,MY PARTNE RFGOE SOUT 4 A SHJORT PERIOD I NEED TO GO TO
THE LOO AND FALL OVER IN THE BATHROOM/ I CANNOT JUST REST AND FALL WHEN TRYING
TO SIWTCH THE TV ON IN THE BEDROOM / RO GIVING TGHE CAT HIS FOOD / OR STOPPING HIM FM EATIGN ALL HIS TREATS WHICH WERE LEFT ONT HE KTICHEN TOP A WEEK AGO/ OR GENERLALLY TYRIGN TO DO SOMEHTIGN FOR MEYSELF I FALL OVER =- AND DO NTO REALISE THE DANGE RI AM PUTTING MYSELF IN AND OTHERS
WHEN MY CARERS ARE HERE I FALL LESS AND I AM TRYIGN THRO THE LOC AL HJOSPICE TO GET CHC FUNDIGN WHICH WOUDL MEAN I COUDL HAV E MOR ECARE TJHAN THE 21 HOUR S IGET AT PRESENT
I am full of admiration for you Jill I don't know how you manage to cope with it all- so many falls in a day - it puts our problems into perspective - all strength to you girl .x PS do you like Elvis in leather ? My wife and daughter behaved just like a couple of teenagers- if I had drooled over some female singer I would have got a good slapping !
Good afternoon, Georgepa, my wife suffered from osteoporosis as well as PSP, a potentially lethal combination because falls resulted in broken bones and a stepped decline in her general condition. If Veronica does not have brittle bones and if you have masked every sharp edge and removed every potential pitfall, she and you may prefer to take a chance for a little while longer that if she continues to fall nothing will be seriously damaged, but one day you may both decide (I hope at the same time) that your wife needs someone at her side all the time when standing up, just standing or walking. Another precaution, if you have not already taken it, is to ensure that the loo door cannot be obstructed if your wife falls and cannot get up.
i too have osteoporosis now and i i am worried about falling ov errand injuring myself badly again like when i just fell out of my chair and fractured my ankle badly in 2007 way b4 dxd with this PSP
Oh Georgepa, it's so difficult isn't it. One of the things I miss most is not being able to pop out when I want to. I haven't been able to for about 2 years. I ran up the road to post a letter, literally ran. I was back within 4 minutes and Colin was on the floor. He becomes more active when I am not around and when he could speak in sentences, told me he was scared when I wasn't there but he can't realise that he is safe if he stays put. Now I have resigned myself to the fact that I can only go out when I have a sitter from Crossroads, he is at the Hospice or one of our son's here. Fortunately these happen three times a week now so I have quite a bit of time to shop, have my hair done, meet friends etc. Perhaps now is the time to request more help so you can get out without worrying quite so much.
I'm a Cliff fan. I never drooled over Elvis, unless I was with friends when I was young and didn't want them to think me weird.
We have just started the Hospice day centre- its going to be lifesaver- despite early resistance V seems to have taken to it . Elvis versus Cliff Mmmmmmmmm ? Think this one might run.
Not a chance. Cliff was always a pale imitation of Elvis. They just don't compare. And neither are as good as Frankie Laine but you are probably too young to remember him. But I accept that Elvis was iconic, like The Beatles.
My kind of music Sharon- bring it on- all the 50's 60's 70's jazz- not so keen on ultra modern bit too discordant for my taste- give me Coltrane Hodges Webster Brubeck any day .
I enjoyed elvis last night was a dream to watch.. I am lucky Brian stays where he is put think he is to scared of falling to move it is hard in one way because he will only stand useing the rotastand for transferring or washing bottom half. And i know (lucky me) i can pop out for a half hour or so.When he has a rest in bed I can nip to the shops etc. Janexx
Most people call them a rotunda. The one I've got is like a turn table with a handle. Brian stands up with his feet on the turntable holding onto the handle and I just turn it so he then can sit on the next item like wheelchair or comode. Janexx
We have a standing hoist. The rotisserie wasn't any good for Colin as he fell sideways so now I have to put a waiste belt on him, hook him up to the hoist and raise him up while he holds onto the bars and stands. If I didn't have it I wouldn't be able to transfer him any more or take his trousers down, clean him etc as he can't stand alone. I use it on my own and so can Crossroads staff if he needs the commode while I'm not here. The carers, however, are not allowed to use it alone so I have to help them. It's the agencies policy, all hoists of any kind, must be used by two people.
Definitely Cliff. In my 40s and 50s I went to many of his concerts with a group of friends; I even bought a Cliff T shirt and umbrella. We also went to see the musical he did based on Wuthering Hights and it was so bad, it was good. I laughed (quietly) all the way through, much to the annoyance of my friends who wouldn't say a word against him. As a singer, yes, as a musical actor, definitely no.
I don't mind appearing to be a loser. All venues are a sell out so there are a lot of us about. We went to see him at the Albert Hall once. We were quite high up and it took us so long to get to the exit as most of the audience were getting on a bit and were having a job to get down all the stairs. The sprightly, wealthy ones chose the seats near the stage so they could spend most of their time dancing. Our little group could only afford the gods so had to put up with the long, slow climb down. I said I was going to write to Cliff and tell him to think of his audience , all getting older and most not as fit as him, and choose a more suitable venue next time. I didn't but I think someone did as from then on his concerts have been at Wembly. I was born in 1951 and as my parents never listened to music, I never heard BO Diddly til much later, by then I was hooked on Cliff.
It's a terrible problem. Both my Dad and my husband went through that. For some reason my husband stopped falling???? and my Dad couldn't walk anymore. With my Dad we just had to watch him. There were times when I would tie him in his wheelchair and call it his seat belt. They have soft belts you can buy and also chair with shelves that clamp across their laps that you can put a box of stuff for them to arrange and rearrange. Also seated obsessional stuff like unwrapping things and sorting things. Anything to keep their hands busy. It sometimes means you have to watch them continually. Also restrict movement..close off rooms and doors and remove stuff and pad stuff. Also protective clothing is sometimes possible. Is she bumping her head? That can be dangerous and a helmet sometimes is necessary. Good Luck, this is a hard one.
They also have alarms that you can put in the chairs or under the seat cushion the rings if they get up.
V's riser chair squeaks so much any way that I always know when she is on the move but finding her things to arrange is not a bad idea - thanks. If I gave her a helmet I think she would throw it at me - not too much head damage yet anyway .Although the way she fell this morning she might have drowned in the commode - not a good way to go !!
The arranging things is a good activity also folding laundry...and folding in general. also dusting the small knickknacks and sorting socks. I used to cut the buttons off of shirts and things to give them to my mother-in-law to sew back on. (she had Alzheimer's). Small meaningless obsessional tasks are all good. Look online under activities for Alzheimer patients.
Dogs are barking must be the neighbors cows marching by. Always the high-point of our day. Need to see what's up.
CBD falls quite a lot, always very lucky ....so far. It was probably only 6-9months ago when he resisted even going in a wheel chair but already he can't walk anywhere safely so it has turned into a priority to use one all the time,indoors and out. We have just had a walking frame with wheels at the front, to see if it would help him from falling indoors but alas,he can't co ordinate it with walking and makes him even more unsafe....pity because he is so upset and frustrated that he can't even go into the kitchen to get an apple or anything by himself.
Whenever I go upstairs to my office, and I only go up there when I think he is settled watching something on the TV or asleep,well that is the time when he always gets up out of the chair and either falls or stands shaking because he is scared of falling and making awful frightening noises!
I have started to try and only go upstairs when he is in bed now but have to listen out for him incase he wakes.
Roy has been offered a place at an Hospice day centre for a day and we are going on Tuesday to check it out....hopefully he will like it and at least I will have a day less interrupted!!! Love to you all x
Hospice is good -V just started and it gives me a whole 5 hours -brilliant.Its time you need for yourself and I have learnt from every one on this site that it is crucial you have some self time to keep your own sanity and to be able to keep going .
My mother in law had CBD and constant falls...also such anxiety when alone. Could not leave her alone. Baby monitor was a lifesaver for us. I could hear her breathe it was so good. At night I could fly out of bed and into her room to assist when she would try to get up for the bathroom. I counted, some nights I was up over 30 times with her. Eventually she had some bad falls And she would have a dramatic decline. Once she broke her hip and had surgery, she lost all mobility quickly, even though the hop healed beautifully. She died June 12th 2014, 3 months after surgery. Peg was probably in her 6th year of CBD although she was misdiagnosed most all of that time. She was 72. Sorry to ramble....take care of yourself as well, you are all in my thoughts and prayers. Jan..Buckeye 7
Don't know about Nader, sorry, Mr. Jones, but how was your holiday? Did you go somewhere cooler? We've got a blizzard on the way, and I wouldn't trade for your heat. Hope you had a fine time. Love and peace, Easterncedar
HI MRS CEDAR AND MR C DIDNT YOU GET MY MAIL I SENT I EXPECT ITS ALL MIXED UP WITH THIS OTHER STUFF ON HERE MATE WELL I WILL NOT GO OVER IT AGAIN JUST IN CASE YOU HAVE FOUND IT JUST LET ME KNOW IF NOT I WILL GO OVER IT AGAIN PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER
Hi, Mr. Jones! Yes, I looked for your note about your trip and found it just now. Thanks! Nice to know the folks on the coach were so good, too bad about the room, great about no falling. What kind of tour was it? Natural sights? Historical? Shopping? Word from exotic locations very welcome, especially since we won't be going anywhere until this next storm passes. We are expecting two or thee feet of snow tonight. Luckily M. C's daughter is visiting from the west coast, so I'll have help with the shoveling! Love and peace, EC
=hi e cedar and mr c well mates here we are again just a quick one hows mit going mr c ok I hope \and your bike is not getting rusty with no use
I must be doing 200 ks a day now but I have been known to tell a few white lies now and again I bet your heart jumped when you saw that 200 ks mate did'nt it or di you guess I was telling a few pork pies mate lies that is \\\ well I hope you have finished any snow shovelling by now mate happy biking to you take care you had better keep in good trim see yer peter jones queensland ====psp sufferers
Hey Mr.Jjones - thanks for writing! i have been meaning to get a note off to you - i know I owe you! The shovelling is taking up most of my spare time. We have tons of snow. I was using a 30-foot roof rake to take the worst of the snow off Mr. C's old farmhouse this weekend. My arms held up, amazingly. I was wearing snowshoes while I did it and so didn't need a ladder. Mr. C kept the fire going in the wood stove while I was out having fun. I got a bit of skiing in on Sunday - the first I've tried all winter. He has been pretty lax with the cycling. I'll be telling him how well you're doing - maybe I'll let the porkies be there for a bit, just to galvanize him. We had to postpone his neurologist appointment AGAIN. They are getiing two feet of snow down around Boston today. We aren't sorry to miss out on this one. Our driveway is so narrow now I can barely squeak the little car in! More later, all the best, EC
What can I say? Haven't you lot ever seen a real man. - Tom Jones!!!! changed my life forever, the first time he strutted around on Top of the Pops, I was 12!!!!!!!! Never recovered.
HEADY TOM JONES HUH WHO IS HE\\\ WHAT ABOUT PETER JONES IS HE A RELATION I STRUTTED MY STUFF WHEN I WAS ON THE KOOKERBURRA QUEEN GOING UP THER BRISBANE RIVER MATE \\\\ YOU MUST HAVE STILL BEEN A YOUNG WHIPERSNAPPER THEN MATE AS WELL ITS THAT LONG AGO THAT IVE FORGOTEN WHAT YEAR IT WAS
PERTEDR JONES QUEENSLAND AUSTRALIA PSP SUFFERER
We seem to have left falls behind as well apart from the odd one, which is a relief. C is fighting to retain his mobility as life confined to a wheelchair would be extremely difficult as we live on a dirt track so going out means going in the car and the thought of loading a chair in and out of the boot is daunting. I struggle with his walker and lightweight chairs here are ridiculously expensive. Meanwhile our new helper arrived Saturday night, young Turkish woman who needs somewhere to live while she writes her Master's dissertation. So she is helping in return for room and board and I am already relieved of washing up duties. And her dissertation subject? Ageing! She came to the right place.
I was told that part of PSP was not recognising danger the part of the brain that has learned this may be effected. My mum was seen by a psychiatrist and psychologist and this trait of continually endangering herself proved part of the diagnosis. When mum was at home with carers I remember I was trying to change a lightbulb which was lodged in the ceiling fitting. I told mum wait till my older brother visits tonight and he will do it. Later found out she was up on the chair trying to do it herself. Before she was diagnosed I used to take her out shopping on a Saturday. When I helped her out of the car I would say do not shut the car door I will do it. She was so clumsy and the edge of the car door was level with her eye. Everytime she would go and shut that door. It is so sad it is as if they are reprogrammed to do the opposite and to hell with the consequences. Mum is now in a great carehome and receives one to one care. The injuries and broken bones she suffered could not continue.
hi eastern cedar and mr e cedar hows it going ok I hope well ewe are looking forward to going away to a place called rainbow bay close to the new south wales border just going in an appartment
for a week I think we could have bought it the amount of times we have been there but its a lovely place right bedside the sea but this is not until march so I have jumped ahead of myself never mond hope mr c is doing well and no more dammed falls see yer peter jones queensland Australia psp sufferer
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Head protection for falls? 
