Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for November 2014

The definition of "heartbreaking"........

Hallo my lovely friends, I know you won't mind me sharing this with you. I spent a few days with my Mum and Dad this weekend and was very sad to see that in...

Hallo my lovely friends, I know you won't mind me sharing this with you. I spent...

•9 years ago

PAIN

My pain is mostly my neck and upper back and when i get up I am very dizzy My question is this what kind of pain do you have ?

My pain is mostly my neck and upper back and when i get up I am very dizzy My qu...

•9 years ago

Scream

Just wondering if anyone across the atlantic heard me scream because the firemen down the road sure didLOL

Just wondering if anyone across the atlantic heard me scream because the firemen...

•9 years ago

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GNT

During last two weeks we change the feeding tube for my father two times and he was admit in the hospital he remove the tube from his nose at night he is...

During last two weeks we change the feeding tube for my father two times and he ...

•9 years ago

Acceptance? Not me!!!! We are all Different!

So in response to the Global Scream one woman replied that she believed in being positive, calm and cultivating acceptance rather than anger ,and will give her...

So in response to the Global Scream one woman replied that she believed in being...

•9 years ago

Cloud

Here's the cloud ! Forgot to download it ( truth be known its taken me about an hour and a half to work out how to get it off my phone onto the computer - a...

Here's the cloud ! Forgot to download it ( truth be known its taken me about an ...

•9 years ago

Well done Screamers

Well done screamers I heard you ! I felt a great sense of companionship -thank you . I went up to my allotment and screamed and when I finished I looked...

Well done screamers I heard you ! I felt a great sense of companionship -than...

•9 years ago

Global scream

I forgot to warn my neighbours so soon had a knock on the door to see what was the matter. As I was explaining what it was we had to laugh my phone started to...

I forgot to warn my neighbours so soon had a knock on the door to see what was t...

•9 years ago

GLOBAL SCREAM

So how was it for you? Rain kept us away from beach, Chris retired to bed as soon as we'd returned from extended lunch at friends' house so at 5pm I screamed...

So how was it for you? Rain kept us away from beach, Chris retired to bed as so...

•9 years ago

1,2,3

Ahhhhhhhhhhhhhhhhhhhhhhhhhhhh X

Ahhhhhhhhhhhhhhhhhhhhhhhhhhhh X

•9 years ago

Global scream day

Haaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa!!!! Love to everyone, enjoy your scream. Lots of love Heady

Haaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa!!!! Love to e...

•9 years ago

Happy Screaming

Enjoy your screams at 3pm today GMT - I'll be thinking of you amazing carers!! x

Enjoy your screams at 3pm today GMT - I'll be thinking of you amazing carers!! x

•9 years ago

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Research

Just got email from Dan at UCSF and he said he was more than willing to talk to those who are interested in Research he said you can also find his info at...

Just got email from Dan at UCSF and he said he was more than willing to talk to ...

•9 years ago

GLOBAL SCREAM

Don't forget GLOBAL SCREAM DAY SATURDAY 15TH NOVEMBER 3PM UK TIME .-let rip for 30 seconds - if you can't scream then pommel a pillow , stamp your feet ,or...

Don't forget GLOBAL SCREAM DAY SATURDAY 15TH NOVEMBER 3PM UK TIME .-let rip for ...

•9 years ago

I thought my driving was improving.

We have just returned home from the hospice, Colin having attended the day centre. I brought the electric wheelchair round the back and in through the French...

We have just returned home from the hospice, Colin having attended the day centr...

•9 years ago

online party

will u be able to make the ONLINE PARTY ON SATURDAY 6 DECEMBER AT 3PM// PZE LET ,ME KNOW ... LOL JILL :-)

will u be able to make the ONLINE PARTY ON SATURDAY 6 DECEMBER AT 3PM// PZE LET ...

•9 years ago

Well I wrote Ellen

I wrote Ellen Degenerous to help bring awareness on our Global Scream day Cant hurt I will try just about anything to get someones attention, dont know if she...

I wrote Ellen Degenerous to help bring awareness on our Global Scream day Cant h...

•9 years ago

Global Scream: Caregiver's Unite II More info

Anyone know how to post on the Association of Family Caregivers ??? I have there website but I think my brains are scrambled today. Here is their website:...

Anyone know how to post on the Association of Family Caregivers ??? I have there...

•9 years ago

Global Scream: Caregivers Unite!!!!

Starting a new chain from georgepa's message: Global Scream...Carers of the World unite - lets have a world wide scream moment - how about on the 15th...

Starting a new chain from georgepa's message: Global Scream...Carers of the Wor...

•9 years ago

Global Scream

Having heard my Dad's (Georgepa) idea of a "global scream" this Saturday, I am going to start tweeting about it using #globalscream to see if we can get it...

Having heard my Dad's (Georgepa) idea of a "global scream" this Saturday, I am ...

•9 years ago

Out of Home Respite

Has anybody in Australia had a happy experience when placing their PSP sufferer in out of home respite? My husband has just gone into an aged care facility...

Has anybody in Australia had a happy experience when placing their PSP sufferer ...

•9 years ago

Being Real, anger and all

I've been thinking, guilty thoughts, about getting so angry at Bob right now today. He can really drive me crazy with his following me around the house, on my...

I've been thinking, guilty thoughts, about getting so angry at Bob right now tod...

•9 years ago

What have you learned?

I keep thinking about me before this illness to my husband and me now..what is the "meaning" of this? If there is one. Have I changed? What have I learned? A...

I keep thinking about me before this illness to my husband and me now..what is t...

•9 years ago

Roisin's return?

Hi, everyone, First of all, my heartfelt thanks to all of you who sent your condolences in response to my posting "1944-2014". May I please share with you the...

Hi, everyone, First of all, my heartfelt thanks to all of you who sent your cond...

•9 years ago

Holidays-II

what a wonderful surprise this morning when I opened my mail. So many of you took time to answer me. This made me cry but for love and joy and community and...

what a wonderful surprise this morning when I opened my mail. So many of you too...

•9 years ago

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PSP Parkinson : Improvement observed

My mother has been affected with parkinson PSP On advice of doctor we have started one tablet of Amantadine, reducing one tablet of syndopa plus I have also...

My mother has been affected with parkinson PSP On advice of doctor we have star...

•9 years ago

A few things

Talked to Dan at UCSF Aunt Bev will be starting at the begining of the year, Yea so excited. Also took her to the hospital for UTI she is hooked on Pepsi and...

Talked to Dan at UCSF Aunt Bev will be starting at the begining of the year, Yea...

•9 years ago

Stem cell questions?

Hi Everyone, Does anyone have any information or personal experience with stem cell reaseach and PSP? Thank you, T.

Hi Everyone, Does anyone have any information or personal experience with stem ...

•9 years ago

Holidays

Today it really felt like the dreaded holiday depression has arrived. So now we head into the cold windy season, without my love to keep me warm. And I find...

Today it really felt like the dreaded holiday depression has arrived. So now we ...

•9 years ago

Possible CBD

Hi, my husband has been given a diagnosis of possible CBD, awaiting MRI results. I have read up on this terrible disease and fear the worst. So glad to have...

Hi, my husband has been given a diagnosis of possible CBD, awaiting MRI results....

•9 years ago

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