Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for November 2014

Physio is a must!!!

Hi all, as some if you know, I am in South Africa at present. We come here twice a year. It's been six months since our last visit, so I was very apprensive...

Hi all, as some if you know, I am in South Africa at present. We come here twic...

•9 years ago

Today was lists

I hate lists , I always have and my wife has always been very good at them. She used to urge me to make lists of things I had to do but I claimed that they...

I hate lists , I always have and my wife has always been very good at them. She ...

•9 years ago

Helping to raise money for psp x

hi everyone, just wanted you all to know I done a sky dive last weekend and managed to raise £960 for the PSP charity Whitchurch I hope will come in useful to...

hi everyone, just wanted you all to know I done a sky dive last weekend and mana...

•9 years ago

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The weekend.

At last we have two days without carers,district nurses,tissue nurses and all the others coming and going offering me equipment that Jim can't use as he has...

At last we have two days without carers,district nurses,tissue nurses and all th...

•9 years ago

What a week

So far this week we have had the dietician to see Brian been to neuro-rehabilitation centre seen the speach and language therapist also had carers start. Not...

So far this week we have had the dietician to see Brian been to neuro-rehabilita...

•9 years ago

Full Moon

Not to sound too weird but has anyone noticed any effect of the full moon? Jill Costa Rica

Not to sound too weird but has anyone noticed any effect of the full moon? Jill ...

•9 years ago

Estuary revisited

It was a beautiful day today so we went back down to the Goatwalk on the Exe Estuary . The afternoon sun ,although low in the sky ,was still warm. The tide was...

It was a beautiful day today so we went back down to the Goatwalk on the Exe Est...

•9 years ago

Hello All

We have completed Neil's bucket list trip I was hoping to do a little bit more but it was time .We pretty much got it all done.Across Canada (Coast to Coast)...

We have completed Neil's bucket list trip I was hoping to do a little bit more b...

•9 years ago

No PEG yet.

This morning my husband had an appointment with a doctor from the gastroenterology department at our local hospital. Staff from the Hospice said in September...

This morning my husband had an appointment with a doctor from the gastroenterolo...

•9 years ago

Thank you

Thank you all for your response about passing, you were all so sweet if we dont ask we wont know seems like us on this sight could teach some of the Docs about...

Thank you all for your response about passing, you were all so sweet if we dont ...

•9 years ago

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1944-2014

My dear wife Roisin died peacefully in hospital on Thursday 30th October following a week of struggling with a lung infection. We were married for 44 years....

My dear wife Roisin died peacefully in hospital on Thursday 30th October followi...

•9 years ago

Frustration at no communication

Can anyone help? My sister 81 has had PSP for about 5 years and can't communicate now has no expression on her face I am finding it so so hard. Can she hear...

Can anyone help? My sister 81 has had PSP for about 5 years and can't communicat...

•9 years ago

How long?

Can I ask how long have you all been dx.and how quick. You went down hill?...Trying to prepare myself.

Can I ask how long have you all been dx.and how quick. You went down hill?...Try...

•9 years ago

CHC FUNDING - WILL I GET IT?

I AM WONDERING WHETHER I WILL GET THE CHC FUNDING 1ST TIEM AROUND -I HAVEBEEN ASSESSED AT HOM E AND AM AWAITIGN THE REPLY FM THE COMMITTEE CONSIDERING MY...

I AM WONDERING WHETHER I WILL GET THE CHC FUNDING 1ST TIEM AROUND -I HAVEBEEN AS...

•9 years ago

Change of routine

Does anyone have problems with there loved ones if there is anything different happening. Oh we did have a bad day yesterday all anxious and heavy breathing...

Does anyone have problems with there loved ones if there is anything different h...

•10 years ago

Loved ones passing

I hope I do not hurt anyones feelings but I keep reading about loved ones passing if you do not mind would those of you have lost of loved one to PSP could...

I hope I do not hurt anyones feelings but I keep reading about loved ones passin...

•10 years ago

Problem

My wife is still able to get out of bed at night and use the commode (several times a night) But when getting back up from the commode has had several falls...

My wife is still able to get out of bed at night and use the commode (several t...

•10 years ago

A sincere thank-you

Thank you to everyone who replied to my post from a couple of days ago. I have to say this forum truly is an absolute god send. I read every single post and...

Thank you to everyone who replied to my post from a couple of days ago. I have t...

•10 years ago

DIFFERENT TYPE OF DRUG

Has anyone tryed a toxic remover with any luck ?

Has anyone tryed a toxic remover with any luck ?

•10 years ago

Bed sores

Hi everyonei haven't posted for a while. Still getting my head around the whole PSP. Dad is deteriorating and the saliva is causing him to cough lots to try to...

Hi everyonei haven't posted for a while. Still getting my head around the whole ...

•10 years ago

I'm sad today.....

I have been very lucky, for the 46 years I have been alive I have had amazing supportive parents who have been my champions in whatever I've done. Today I had...

I have been very lucky, for the 46 years I have been alive I have had amazing su...

•10 years ago

Little things that brought a tear to my eye.

Last night, two of our grandsons,4 and 7, stayed the night. This morning the 7 year old came into my bed very early and started asking questions about Colin's...

Last night, two of our grandsons,4 and 7, stayed the night. This morning the 7 ...

•10 years ago

What difference a day makes

Today we got wedged in the a ladies lavatory in Exeter. Someone mentioned Xmas in front of my wife who insisted we went Xmas Card shopping immediately because...

Today we got wedged in the a ladies lavatory in Exeter. Someone mentioned Xmas i...

•10 years ago

Smiles - question

Something I noticed a few times, just wondered whether anyone else also noticed this. Hubby always took a little while to respond to questions, however, when...

Something I noticed a few times, just wondered whether anyone else also noticed ...

•10 years ago

1939 - 2014

Hubby died at home, peacefully in his sleep. Maddy

Hubby died at home, peacefully in his sleep. Maddy

•10 years ago

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