Hallo my lovely friends, I know you won't mind me sharing this with you. I spent a few days with my Mum and Dad this weekend and was very sad to see that in the last 3 weeks my Mums cognitive behaviour has worsened yet again. My Dad continues to be overwhelmingly amazing - yes, hugely frustrated at time (she can be truly demanding and says some awful things) but also he's kind and loving and oh so sad as he watches his lovely wife of 47 years change in front of his eyes.
I guess I notice the changes in a more shocking way as I don't see her every day but I HATE this disease, I HATE what it's doing to my lovely Mum and how it's hurting my wonderful Dad. Today Mum had a bad day, she woke very very glum and to hear her sobbing whilst my Dad tried to comfort her was just heartbreaking - i had a good sob over the washing up. Mum didn't want me to leave today, she was convinced (for a while) that I no longer loved her because of her difficult behaviour and kept asking me why I had to go. I held her hands, stroked her face, told her how much I loved her but still she sobbed. PSP you are the cruelest of diseases.
Thankfully I managed to calm her down with stories of when I was little and then silly stories that made her laugh like a child but god was it hard to get in the car and leave them. Every time I leave the house I feel like a little piece of my heart has chipped off but hopefully I leave it there with my Mum and my Dad but I can honestly say, I now understand the true definition of heartbreaking.......
Thank you for listening x
Written by
Katet68
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16 Replies
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Kate what the three of you are going through is impossible to put into words. What you as are all suffering is is indiscribable. I sincerely, send you love and pray that you continue having strength. As you say this disease is !!! Try to find some help for yourself too. I only wish I had more advice xxxx
Yes it is heartbreaking for all concerned, especially for your dad who could never have imagined what their retirement would be like when they got together years before. Being in your dad's situation, we both love it when our sons and their families visit or phone so please do it as often as possible. Your parents are blessed to have a daughter who cares so much and I hope next time you visit there will be more laughter than tears.
i still ha ve to have word that thef ctttee has granted it and have not heardanythign form the socua worker who was in charge of it..'btu i hope to ge tsoem more jar sin place 3 the new year then i will eb supervise dhwne i am at tai chi and choir rehearsals
i still ha ve to have word that thef ctttee has granted it and have not heardanythign form the socua worker who was in charge of it..'btu i hope to ge tsoem more jar sin place 3 the new year then i will eb supervise dhwne i am at tai chi and choir rehearsals
yes i have been doing tAI CHI with a great group of U3A folks for nearly 4 yrs now and b4 that i did it for a no of years
it is really good for my balance except that in the break an d at the end now i tend to fall over . so i need to use my wheelchair and have my car er with me to prevent my falling over
Kate thinking about you - my dad is the one being sick and my mum takes care of him. I'm feeling the same hate as you against PSP. and like you I seem to remember all the silly things and jokes the family has been through to cheer everyone up. take care Gwen
First.let me start with a big hug! I believe ot is one of the hardest things to watch loved ones loosing the battle of these diseases. Love your mom and dad as much you can. Support your dad every way. Reassure your mom when she has doubts and fears. Most of all take it all one day at a time
Yu hit the nail on the head yr poor dad must be suffering. So much I is so cruel My husband of 51 yrs has it I no exactly what yr dad is going thru One day at the hospital my husband tooo cried like a baby out of sheer frustration!!!! Thank goodness he let me hug comfort / cry with him That's why I have to bring him home. And not institution Alize him I hope I'm doing the he rite thing Yu are not alone I am under the name Kolton Send me a message anytime We need to comfort each other
I know exactly how you feel I nursed my mum for ten months sadly mum passed away 3rd June and it it heart breaking to see them deteriorate in front of your eyes, I ache so much to see my mum. Sending hugs to everyone xxx
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stair lift or bedroom downstairs?
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