Research

[kryste]

Just got email from Dan at UCSF and he said he was more than willing to talk to those who are interested in Research he said you can also find his info at ClinicalTrials.gov

[sidharth_roy]

I am interested . My mother is affected with parkinson PSP .

Her condition is deteriorating rapidly.

I am sharing the medical reports and short video of my mother .

drive.google.com/folderview...

She now unable to get up from Bed without assistance .

Since last one and 1/2 year we are giving the following medicine.

1. Glavusmet 50/100 mg : Twice a day after food

2. Vogilator MF 0.3 / 500 mg : Before Lunch

3. Lantus injection @ Bedtime

4. Ecospirin AV 75 mg @ After Dinner

5. Syndopa Plus 125 Mg : 4 Tablets Daily

6. Syndopa CR 250 Mg : After Dinner

7. Rasalect 0.5 mg

8. Physiotherapy

9. Antadamine : One tablet daily has been started recently

[kryste in reply to sidharth_roy]

Dan Luong UCSF email is [e-mail] phone number is 415-476-0679 i hope he can be of assistance or at least give you some hope mu prayers are with your mom

Kryste

[sidharth_roy in reply to kryste]

thanking for your kind words and prayers .

I am feel strengthened by your prayers and when nothing works , prayer works ..

I do not know how but I feel my mother condition is improving since last week . I have started Antadamine and homeopathic treatment since last 10 days ..

I am recording video of her every 2 weeks to see the improvement / deterioration to share with doctors as she is too ill to travel .

The email id of Dan Luong UCSF was misspelt in your message . The email id of Dan Luong UCSF is [e-mail] and I have send him the case history for kind advice.

I earnestly want that a cure to this dreaded disease must be found.

thanks & best regards ,

Siddharth Roychowdhury

Calcutta / India

[phone]

[kryste in reply to sidharth_roy]

What is Antadamine for my aunt only real problem is she keeps getting UTI it sure seems they have your mom on a lot of medication my aunt can still feed her self use of her hands can still use the computer mostly walking and not having any streghth when she explains it to me she tells me just lifting her arm feels like 500 lbs other than that hearing is a problem but I boughht her a hearing aid at Walghreens for 34.00 her eye sight she has like double vision the doc told me to take tape the foggy kind and cover one eye she understands and can still answer me she might have to repeat it acouple of times but does get it out I sure hope we find some answers soon I go over everything in mind all the time questions like could mucry when she was a dental assistant have caused this maybe the pepsi she drinks so much so many questions but i can not give up this can not be the way she goes out. my thoughts and prayers are with you and your mom

kryste