Talked to Dan at UCSF Aunt Bev will be starting at the begining of the year, Yea so excited. Also took her to the hospital for UTI she is hooked on Pepsi and if I do not keep up the water more she will get UTI well they kept her to put in antibotics for the night they did not give her the right amount of meds(she takes Carbidopa-Levodopa 25-250, Pramipexole 0.5 mg, and takes Paxil for depression) when she came home she had the shakes like Parkins not to bad but enough that is was driving her crazy she has never had the shakes anyway sorry getting to my point she also started getting pretty tense in her muscles so I asked her PC doc to prescribe her a muscle relaxer and OMG she slept great but when she woke up both eyes were wide open all day stayed that way till we just got back from California a hour ago and I put her to bed they have not been open like that since before PSP we couldnt believe it she looked at every thing she could and had a smile on her face the whole way home we goofed off out driving around but it was for about six hours drive normaly 2h 45min when she is asleep her eyes are wide open also and she has a full blown conversation with someone I (I like to think its Grandma or a few good angels) anyway just wanted to bring it up and I will discuss it with her Doc but when she is complety relaxed her eyes stay wide open Sorry my spelling sucks
A few things: Talked to Dan at UCSF Aunt Bev... - PSP Association
A few things
I forgot to mention if she does not take her Paxil she is like a winny 2 year old bad enough that that I want to pull my hair out , but when she takes it shes normal
OK, I found a couple. You win.
Kryste, I could not find the spelling mistakes but I loved the "stream of consciousness" writing style and can't wait for the next instalment which I hope will be as upbeat as this one.
Christopher
Well thank god this has spell check I guess because I sure had a lot of red underlined words LOL
my spellcheck is there too but i ignore it a lot of the time a si have too many now my once good touch-typing is now dyslexic beyond words!......
so i did not even notice your mistakes so plz keep up with your postings
lol jill
hi heady
how goes it in s africa
plz let us know
we hav e had a post fm you saying how a change of scene has work ed well for S
anythgin else to report on?
lol JIll
A rough few weeks 
DON IS LEAVING THE HOSPITAL
Things are getting worse.
Anxiety and irrational thinking/ hallucinations 
CBD decline
