My dad was diagnosed with CBD - needing to... - PSP Association
My dad was diagnosed with CBD - needing to urinate a lot is a big problem and he wakes mum 3-4 times a night for help, any suggestions?
hi there small bear im not sure if your dad is capable of this and im sure you thought of it before BUT could'nt you get one of those bottles that you go in for men sorry not sure what they are called probably a urinal bottle i suppose sounds about right as i say im not sure if your dad could handle this or not but its just a thought im sorry i could not come up with any magic solutions perhaps someone else on here knows someway of getting your poor mum some well deserved sleep good luck with it mate peter jones queensland australia psp sufferer
dorothy-Thompson
Hi Smallbear, My husband had the same problem until we discovered, through this forum, Conveens supplied by a company called Charter Health. Ask your gp about them, you can get them on prescription and they are a life saver. Good luck.
Hi Smallbear. We had a similar problem with my hubby who has PSP. We were advised to use conveen sheaths which worked well for a while, but as things have progressed now, he has had a catheter fitted and this makes things better for both of us. You should speak to your GP or Distict Nurse who will advise which is best suited to your dad. Good luck.
Take care.........SuzieQ x
Hi - I would suggest you discuss this problem with your GP . It may not be as a consequence of CBD. I would suggest he has a PSA test which can indicate possible prostate problems -- better to find out sooner rather than later.
Hi Smallbear, i was told some time ago to limit coffee intake, no coffee after midday, also to restrict drinks about 1-2 hours before bed. To date hubby only has one coffee in the morning and stops drinking around 7.30pm, it works well to date as he was up 3 times a night, when i started he had very dark urine and i worried but it sharp went back to normal, just give plenty of drinks throughout the day, i have know idea how far advanced your dad is, also it may be some medication he's on so check before doing anything. keep your chin up and good luck.
Hi Small bear
My husband has CBD too, if you are in the UK ask to be referred to a Continence Nurse, ours has supplied a conveene which can just be used at night and saves the constant trips to the toilet and broken sleep. If we have any future problems we can then contact her without going through the GP.
Good luck
Lorri
Our gp put us in touch with the nightingale nurses (continent) nurse. VeRy helpful my. husband now uses a convene sheath and night bag and we both have a better nights sleep. Soon got used to it . In fact it has enabled me to go out and leave him for a short while and know whe won't be trying to get to the toilet because he also uses it during the day if neaccessart
Usually going multiple times in the night is a prostate problem. Check with your GP for meds that can and will help. The meds open up the path for urine and allow good flow so the bladder empties completely thus not having to go as often. Good suggestion about limiting drinks before bedtime from another member.
HI SMALL BEAR
I HAVE PSP AND THE URINATING IN THE NIGHT WAS EVERY HOUR ON THE HOUR
I NOW TAKE MEDICATION WHICH LIMIT S THE TOILET TRIPS TO 3 / 4 PER NIGHT
ASK UR GP (OR AS A MAN GE THSI PROSTATE CHECKED OUT TOO )
LOL jiLL
Thanks everyone. What I have learned from your responses is my dad has quite a common CBD issue and he's quite far along. Dad has medication which supposedly helps and he has had his prostate checked. As I am in UK it sounds like a continence nurse may be next - have heard about convenes but negative as well as positive. To be honest I think dad will still wake mum at night either through the sensation of needing to urinate or because he is becoming very confused. I think I will have to encourage mum to rest during the day when she can or I will need to relieve her occasionally. Such a nasty condition this.....
Happy Christmas all
hi smallbear
i am sosrry th emeds r not working for your dad
a continence mnurse changed mine from oxybutanin to vesicare which has tkaen 3 months to have full effect
worse when i am stressed or away from home (rarely away now)
dont knwo about convene sheaths
lol JILL
Small Bear- I take Oxybutynin 2.5mg (on prescription) It really helps.
Liz
