My mum has recently been awarded continuing care and is in hospital awaiting transfer to a care home. There are not really any vacancies at the moment so she is in hospital even though there is nothing wrong with her (apart from PSP). My dad can no longer cope at home. He had 2 carers coming in 4 times a day but only for very short periods and it is now felt that she needs a higher level of care that only nurses can provide. I think this decision has been made because over the last few months, she has been mostly in hospital. My dad tends to panic and pick up the phone too easily to ring for the paramedics and sometimes hospital is not where she needs to be. It is a huge responsibility for him and he is feeling the strain after 4 years of doing a very difficult caring job brilliantly.
I asked whether she could have continuing care in the home and was told by a social worker that this would not really be an option. I am now thinking about having her at my house as my dad would find the carers too invasive. I have since read that CC can be provided in the home and that the family's wishes have to be considered. My question is whether anyone has had continuing care in the home and if so how much care is provided? My mum is bedbound now, cannot talk and is PEG fed, although she does eat (very little) pureed food and thickened liquids. I cannot bear the thought of her in a home for the little time she has left and we would be able to spend so much more time with her if she was with us.
The problem is I work 3 days a week (mostly from home though), I have 2 children at school and another due in April. So the practical care I would be able to provide would be limited. I could supply love and affection and overseeing her care and be an extra pair of hands but I cannot be caring for her 24 hours a day as I am in and out the house all day.
Does anyone have any experience of what type of package could be provided or do those in the know feel that a care home would be the best place for her to receive the care she needs?