Frank has been on such a level stage with his PSP that we had become a little complacent. but this past week or so sees a difference in him, sleeping so much of the time, very laboured breathing and his hands seem to have found a life of their own, he seems to reach out for something, even in his sleep! I would really like a PSP nurse to come and visit him sometime in the New year and hopefully that can be arranged. It would help me having someone with experience of the PSP to explain which way the illness is going. Maybe just clutching at straws, but what else is there to clutch at.
Wishing the members, families, carers a peaceful time for the Christmas break and only good news for the New Year.