Today I realised that my mother is losing her speech very rapidly and can scarcely answer Yes/No questions any more. Speaking was clearly so much effort for her today, that I asked her to adopt the new method of squeezing my hand to mean "Yes".
However, this won't be an option for much longer as she increasingly loses mobility. So it made me realise that pretty soon she may be physically paralysed, speechless and therefore not be able to tell me when she is in pain. I can't bear the thought that she might in future suffer this way.
Are there any methods that late stage PSP patients can use to indicate that they are in pain? If so, I should like to adopt them now, while she still has residual communication left.