At last after a lot of sweat toil and persistence we have got CHC funding.
We shouldn't have to fight to get what our loved ones need but that's life.
Hopefully life will be a little easier now and considerably less dangerous with more help with handling ect.
I advise all of you in a similar situation keep nagging and fighting for what you deserve.
That's great news Joey. My parents were able to get CHC funding for my dad who has PSP. I know it seems such an added stress for people to have to deal with, but like you say, that's life. I always read the posts on this site and think it's wonderful how people help each other and offer support and advice. My Mom posts on here, SuzieQ, and we both follow people's stories, but I have never posted on here before. My parents live in the UK, and I moved to Canada 12 years ago. My dad was still very active and running his own business then. I had no idea that all of our lives would change when my dad was diagnosed with PSP. I go home every year, and skype regularly, but it is so hard to be so far away. I see the constant struggles my Mom faces and my heart wants to break for them. I have such feelings of guilt being this far away and am planning my next trip for spring next year. I just wanted to thank everyone for posting your thoughts, feelings and advice. You have no idea how much it helps. Stay strong and I'd like to wish everyone a peaceful amd stressfree Christmas.
joey
you are the second one this month that has received it, giving hope to the likes of me trying to get it for husband Frank. He is down for assessment in March, but you have given me a bit more courage to start chasing again. Really pleased for you.
Kay
Great new hope things get a a bit easier for you all now
Thats wonderful news its a horrible process but worth persisting - we got it for Mum in October. At this time of year you need all the help to relieve the strees available!!!
Have a lovley and peaceful Christmas
Sarahx
What is CHC .? How do you get it?
I'm also unaware of what CHC is.
For Frosty and summergirlx476, here's a link to information on CHC -
dh.gov.uk/en/Publicationsan...
I am afraid it is only useful if you are in the UK.
h
We got a negative this time but will continue to fight it. The answer this time (from Medway who are lacking in knowledge about PSP ) is that they do not consider PSP to have medical needs and that mum is cared for well enough in the care home. Fine till she gets an infection like the one in August when we nearly lost her. They seem to only be allowing it in this area to people at death's door and that is too late for our people due to the rapid progress of the illness. The only reason the care is good enough is because I am at the home every day overseeing it!
The way I see it , the more of us that claim and pursue it the more we will push them into inclusion, knowledge and understanding of PSP needs and to take some consideration of the fluctuations and unpredictability of PSP and indeed CBD. Keep at it everyone!
Dianne
CHC
CHC -The outcome
