Hi I have just looked on the the HS website and see that there are several rheumatologists listed for the Kent area - I am going to see my GP tomorrow to asked to be referred to a rheumatologist (have been recently diagnosed with APS and seen haematologist, but have been discharged without treatment even though I have a list of symptoms!) - has anyone got any personal experience of the one listed for Kent and would recommend them for their experience/understanding of APS?
Thanks Nic
Hi Nic and welcome
I see that you have already familiarised yourself with the charity's website.
I hope that some others from kent will reply to you soon.
Dave
Hi,
Good Luck to day to find a Doctor who understands this rare illness. What I have understood all the doctors of the list are recommended as knowing this illness.
It is very important to have a Specialist.
Best wishes from Kerstin in Stockholm
If you are in Kent, ask to be referred to St Thomas'. It's an easy train journey and the most knowledgeable, kind, helpful team you could ever wish for.
Good news my GP has offered to refer me to a rheumatologist in London he did mention St Thomas' so hopefully that's where I will go. 😊
I am under Medway hospital for my RA they know about my APS and SLE and are very helpful it can take a while to get your body use to the meds that they give you. I am now waiting to hear if I can have gold injections to help with the pain and swelling in both hands. It best to get your GP to refer you mine only took a few months before I saw one. Plus if you have any lupus RA may not show in your blood works
Hi I'm in Kent too and I'm in the same about with asking of anyone good and the one in Canterbury is useless which is what I'm under and now upset because I'm left on warfarin which I'm never in range with and always I'll other option was go on nothing which I can't go back to. I would be interested to know if you found anyone
Hi I was referred to Guys and am still on aspirin. I think it is pot luck with who you see - the consultant I’m under reckons that the list of symptoms I have experienced (brain fog, fatigue, joint pain, tingling/numbness in hands) is unrelated to APS as unless I have a stroke, PE you don’t have syndrome only antibiotics- which is a load of nonsense. However from what I’ve read on here there are some really good specialists at Guys. Good luck
Why isn't there a LISTGOOD of doctors in London or what ever country you guys are in....
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Rheumatologist for APS
Strange feeling in head. Derealization.
