Herts or Essex Rheumy?: Hi all, just... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Herts or Essex Rheumy?

mochamum profile image
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Hi all, just wondering if anyone could recommend a good rheumatologist in the Hertfordshire, Essex or North London areas? I have connective tissue disease and antiphospholipid syndrome (but sero-negative) so ideally I'd like to see someone who is willing to accept my diagnosis without the positive blood tests! I have looked on the Hughes Syndrome and Lupus UK websites for recommended specialists but I can't see any in my area so I'm seeking personal recommendations. Thanks.

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mochamum
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HollyHeski profile image
HollyHeskiAdministrator

Hi, I lived in Herts when 1st diagnosed (10 years ago now) & was referred straight to Prof. Hunt at St Thomas's, then she referred me to Dr. D'Cruz. I now live in Devon & still go to London for all my check ups.

MaryF profile image
MaryFAdministrator

It is a question of the one nearest to you, unfortunately being Seronegative can be problematic with the medical profession, which is why I make sure I keep hold of any results where it shows up, which it does sometimes! MaryF

Lure2 profile image
Lure2

Hi,

I guess you have got your diagnose of APS on symptoms back in Australia. Do you still have symptoms?

As Mary says try to get hold of some documents from that time in Australia showing your symptoms.

Sometimes we have to travel a long way to get an Expert on this illness. But it is well worth the money it costs.

Best wishes from Kerstin in Stockholm

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