I am in New Jersey USA and I feel like there are no experts here in this confusing aps syndrome. I have a hemotologist and a rheumatologist who I feel are doing their best but just don't fully understand. They say there are no other symptoms to aps besides clotting but we all know differently.
I was put on lovenox injections twice per day, full dose aspirin and hydroxychloroquine after an acute ischemic stroke in June. Previous to that I suffered with mysterious symptoms for months such as double vision, numbness, headaches, intense muscle spasms and 2 pregnancy losses ( which they later ruled unrelated). As soon as I started the Meds the symptoms completely disappeared. It's a shame I had to suffer a stroke to get treatment and a diagnosis
Now my hemotologist switched me to baby aspirin. Now I am having issues with my right eye (blurry) and pains in my head. I am worried my blood is becoming sticky again in that area. The eye dr ruled out hydroxychloriquine toxicity and changed my prescription for glasses. Previous to all of this I never even wore glasses.
I took a full aspirin this morning to be safe. I don't trust the doctors to be able to help me. I want to become pregnant too which is a while other debated issue with no clear answers.
I feel so alone with this life long, life threatening disease that no one seems to fully understand.