Hi we are not medically trained on here, you really need to write to your GP and copying in your main Hughes Syndrome/APS consultant, expressing your concerns, they need to weigh up the risks between them, also include any other specialists, it will move the conversation on a bit. ncbi.nlm.nih.gov/pmc/articl... MaryF
Hi Loretta- no I have not had experience with it. Your hematologist will have to really guide you carefully on this one. I’m sorry I can’t be useful...
Sorry to hear you’re having trouble with loosing bone density.
Stay warm- stay healthy! New York is so beautiful this time of year.
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