Surgery : Hi guys & dolls Can I just... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,622 posts

Surgery

amy1808 profile image
11 Replies

Hi guys & dolls

Can I just ask if any of you have had surgery whilst on Warfarin. I need to have a breast operation and the surgeon is a bit “twitchy” about doing it ( his exact words) I have said why can’t they just bridge with the injections but I get the feeling he is trying to avoid it all together . He is sending me for an MRI now to see if surgery is absolutely necessary 🤦‍♀️they don’t know if it’s cancer. It was them who said let’s whip it out , then everything grinder to a halt when they se I’m on Warfarin. Even the nurse specialist said there are other surgeons to use.I’m just gob smacked , what if i needed emergency surgery.

Written by
amy1808 profile image
amy1808
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Star13 profile image
Star13

They should ask your Haematologist for a surgical plan which will include bridging for both pre and post surgery and any other issues that are needed such as knowing if there is to be blood loss and how much.

KellyInTexas profile image
KellyInTexasAdministrator

Oh, yes. Many here have had surgery.

They are bridged. They are brought back up to thinning much more quickly than non APS patients. The hematology Dept at top London hospitals ( for example guys and st Thomas or UCLH ) have protocols for APS patients. The surgeon wold need to call.

You will need a surgeon to work with a hematologist and anesthetist together, but the hematologist will lead the show.

There will be a machine in the theatre called “ cell saver” which saves and reuses the blood should there be an issue. I know absolutely nothing about this- your surgeon could snd should explain this all to you.

HollyHeski profile image
HollyHeskiAdministrator

What you really dont need is a surgeon who may/maybe not want to do surgery, may/maybe not cancer - you need confidence that all this is right for you.Yes they worry about additional risk of warfarin and it's right to check things out with additional non invasive tests, then with a bridging plan from your heamatologist or APS specialist, which is now standard written up by Thrombosis society, your surgery should be accessed.

I went through similar with a papilloma- they took 2 years before finally deciding yes surgery could go ahead, this was many years ago before bridging plans were done, all went ok and it was not cancerous!

Guys and St Thomas thrombosis team have an App that can be downloaded which has bridging plans for all anticoagerants inc DOACs - try that or see if you can talk to your specialist?

KellyInTexas profile image
KellyInTexasAdministrator in reply toHollyHeski

As the old timers say in Texas... “Amen, brother Ben!”

dottiedoris profile image
dottiedoris

That’s an appalling way to be treated! All that needs to be done is for him to make a plan with your Haematologist. I’ve had a couple of surgeries on a high dose of warfarin. They always recommend that I stop warfarin 5 days before and use bridging therapy. They do want the surgeon to advise when to restart the warfarin (usually the next day) so maybe that’s why he’s twitchy? You just then bridge until your levels are back up. It’s easy when you know how!!

GinaD profile image
GinaD

I had an iffy cyst removed --while still on warfarin! Yes, I did bleed. On my drive home my husband drove while I kept pressure and cotton patches on my breast. It finally stopped a day later. ( Note that I did tell the staff at that mammogram clinic that I never had had a bleeding problem before. They were worried about the cyst becoming malignant and I was an out-of-state patient.) I present this as a worst case scenario.

I have had 2 joint replacements and did the usual bridging. All went well. No bleeding, no clots.

Oh.., and by the way, ... the cyst tested benign.

MaryF profile image
MaryFAdministrator

Your hospital, (the hospital that this consultant works at), will have the bridging protocol for patients on Warfarin including those with Hughes Syndrome/APS. It is terribly important that your main Hughes Syndrome/APS consultant is aware of what is going on, you can trigger a conversation by writing to them both by email, so that they talk to each other, that is what I have done in the past. MaryF

Bluma profile image
Bluma

I’ve had surgeries. We have to stop the warfarin at least 5 days before and do the lovenox injections up until day of...

KellyInTexas profile image
KellyInTexasAdministrator in reply toBluma

Yes - it’s very individual. Usually we are shifted to lovenox a few days prior, and only have lovenox out of system an hour or two prior- and then maybe only at 1/4 potency or a little less. It’s brought back up sometimes four hours or less after surgery depending on where the surgical site was/ how vascular the site was.

Holley profile image
Holley

Yes, I've had many surgeries and procedures since being on Warfarin: Mitral valve replacement, oophorectomy, gallbladder removed, tubal ligation, endometrial ablation, root canals, ovarian cysts removed (when I still had both ovaries). I also had a kidney biopsy done at the National Institutes of Health (NIH) here in DC. That was the only time I've had any complications with procedures. I was not under the care of my regular medical team. The doc restarted my Warfarin too soon at too high of a dose and I ended up in the hospital with a bleed in my psoas muscle.

Any time I've had a procedure done, the prep has been: go off Warfarin 5 days prior to procedure, do Lovenox injections twice a day during that time and then hold the evening shot the night before the procedure, once procedure is done usually restart warfarin & bridge w/ Lovenox until I'm in my therapeutic range again (took about a week). INR checks every few days to monitor.

Nickisax profile image
Nickisax

Hi. I had a breast reduction whilst on Warfarin and was given a plan for stopping and starting from my surgeon. Had no problems at all. Good luck x

Not what you're looking for?

You may also like...

Bridging Protocol-Surgery

Bridging protocol for my Surgery, I finally got my Plan should I say and it will go as follows...
jetjetjet profile image

Warfarin and Spine Surgery

Three years ago I had multiple PE's while on low dose of warfarin (INR was found to be only...
traveloasis profile image

brain aneurysm surgery and warfarin

My brain aneurysm saga: As in my prior posts, I was diagnosed with a 3mm brain aneurysm in Sept....
mozelle profile image

Is warfarin not the med for aps anymore...if not what other anticoagulants do they give?

Professor d Cruz said 20 years they would put you on warfarin but not now. So he recommended seeing...
Charts profile image

Good Early Surgery Outcome but frUstrating Warfarin management

Sorry it's taken a couple weeks to write an update on my one level spinal fusion but here it goes:...
Godstrong profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.