Covid-19 injection : Just wondering if... - Hughes Syndrome A...

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Covid-19 injection

Vespa1 profile image
15 Replies

Just wondering if anyone on here has any experience of someone that is taking warfarin and the injection.?

I have read on the government advice that people taking warfarin should have an intramuscular vaccine. A nurse friend of mine confirmed the reasoning for this but I am also aware of someone not being offered this and then she was ill for a few days. I’m not saying that was the reason but she is the only person on warfarin I know to of had the injection and wondered if anyone had other experiences or knowledge of people with APS and taking warfarin?

When asking the anticoagulant clinic they advised we get in touch with them when a date is received so they can monitor my husband’s blood.

Hope this helps some and also hope to gather more information.

Yours hopefully

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Vespa1
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15 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi, earlier today dottiedorris put a post explaining her experience with the vaccine, would be really helpful for you.Also link below from world thrombosis society advice

worldthrombosisday.org/covi...

Vespa1 profile image
Vespa1 in reply toHollyHeski

Thank you, I have just read both. I get very concerned over clotting as husband has now had 4 strokes even when on coagulation.

KellyInTexas profile image
KellyInTexasAdministrator in reply toVespa1

The reason for concern with the vaccine and warfarin is bruising at the injection site. No concern for the vaccine itself causing a risk for clotting.

( just in case this was your concern. )

Hugs from Texas for you and your husband. Such a difficult time for the UK right now.

KerryA profile image
KerryA

The 2 currently available vaccines against COVID19 are both intramuscular injections. I have APS and am on Warfarin and had the vaccine 2 weeks ago. My left upper arm was a bit sore for a couple of days/nights and I had a slight headache, but was otherwise fine. I had already read an article by Dr Beverly Hunt, one of the best Haematologists around, that it's fine to have these vaccines if you're on anticoagulation. Before I had the vaccine they asked me if I am on any meds and also if I was feeling unwell in any way. They said that being on Warfarin is fine but I might bruise (I didn't) and they wouldn't give it to me if I was feeling unwell.I hope that reassures you. If in doubt check with your husband's GP and /or Haematologist.

Vespa1 profile image
Vespa1 in reply toKerryA

Thank you for you time in replying.

Siobhan9 profile image
Siobhan9 in reply toKerryA

Hi, thank you so much for this post, I ‘ve recently been diagnosed with APS following a stroke in March and on Warfarin since November, this is reassuring re vaccination.

Christine7 profile image
Christine7

Hi I’ve got APS and my inr is between 2-3. I’ve had my first vaccine Pfizer one. I had arm and joint ache for 24 hours and am fine now. I was told because my inr is below 4 it’s fine. Hope this helps

Lure2 profile image
Lure2 in reply toChristine7

Hi Christine,

We talked 5 and also 6 years ago here. Dave (Admin) suggested you should perhaps have a higher INR than 2.0-3.0. You are Lupus Anticoagulant positive and those people (like me)often need a higher INR than 2.0-3.0. I need an INR of 4.0 to be without symptoms.

Have you now found a Specialist in the UK? Have you got a diagnose of Sjögrens today? As we said then eyeproblems are common with APS. Could you buy "Sticky Blood explained" by Kay Thackray that you said you would look for?

Christine7 profile image
Christine7 in reply toLure2

Hi Lure2 I hope your well,

My inr has always been 2-3 and at the moment I’m symptom free. I didn’t get a diagnosis of sjogrens and with the help of eye drops this is now ok. I have an annual check up at my rheumatology clinic but don’t think he’s an APS specialist. Take care and stay safe.

Lure2 profile image
Lure2 in reply toChristine7

Thanks, I am fine. I know my blood.

MaryF profile image
MaryFAdministrator in reply toLure2

Happy New Year Lure2 x

Lure2 profile image
Lure2 in reply toMaryF

Dear Mary,

Wish you and your family the same!

Dot69 profile image
Dot69

I had a letter from my Warfarin clinic at the hospital which reads Covid vaccines are alright to be given if you’re on Warfarin

Pinoretum profile image
Pinoretum

I had first dose of covid vaccination 3 weeks ago. No problems.

Vespa1 profile image
Vespa1 in reply toPinoretum

Thank you and glad it all went well. Did your INR need to be below 3 ? Just a nurse said to us it did and hubby’s range is 3-3.5. Also was your blood INR monitored at all afterwards?

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