Hughes Doc in Colorado?

[Mancoca]

Anyone know of a Hughes/APS friendly, knowledgeable or even tolerable doctor in the Colorado Springs, Colorado, USA area?

Karin aka Mancoca

[MaryF Administrator]

Hi previously a member did say that 'Dr Kathy Hassell at University of Colorado is excellent' I should try that, obviously being in the UK we can't be sure, but this came from a member in the USA. MaryF

[AnnNY]

Dr. Jill Shofield in Centennial is very good. She has worked with Dr. Hughes. APS is one of her specialties.

[Lure2]

Hi Karin,

I did not see your new post. I can see you have already had two answers; one from Mary and one from a trusted member here. That is great! I am so glad for you and hope it will result in something good.

Please let us hear how it goes for you! You know where to find us.

Kerstin

[Mancoca]

Yeah! Thank you sooo much for the suggested docs in Colorado, this is awesome!

Sincerely,

Karin/ Mancoca

[orygun66]

Dr Hassell is a great hematologist to see. Dr Schofield specializes in APS. Both are awesome attentive doctors in the Denver area. I see both of them.

[KellyInTexas Administrator]

Dr Jill schonfield in Centennial Colorado is one of three actual APS specialists in the United States. ( you are lucky she is in your state. I think she will be excellent.)! I would definitely make an appointment, and in the mean time get established with some one else closer to home . A good Rheum closer to you, or a good internal medicine physician. If you already have a def diagnosis, then you just need a good internal med did and hematologist? You need a team . Maybe you could call schonfield's office and they could recommend someone in your area while you wait for appointment?

[Tofino5]

I second the replies here - Dr Kathryn Hassell at Anschutz is a wonderful hematologist, I saw her for years, she referred me to Dr Jill Schofield, an APS specialist in the US, a rarity. She is in Centennial Colorado. It will take some time (9 months for me) to get in to see her, but don't give up. It is totally worth the wait. She is friendly, thorough and warm, apppointment visits are long, she doesn't rush you, and she answers questions. I've seen her 3 times and cannot recommend her highly enough.

Good luck!

Anita

[jordanibanani]

Sounds like the other members reached you first, and here I thought I was alone in the area. Lol. I have both doctors and both are amazing, but as previously stated, Dr Hassell will refer you to Dr. Schofield at ImmunoE in Centennial. Warning, she's booking a year out right now. She only has one MA and is drowning in patients. But she is very much worth it.

[Mancoca]

This is all so very helpful.

Does anyone have current contact info. For Dr. Schofield because when I googled her it says her office is permanently closed?

Karin

[AnnNY]

This is her office phone number-- [phone]. If you can't get into see her for a year, maybe you should go to the hemotologist recommended here first. At least she maybe able to get your INR in the proper range until you see Dr. Schofield.

Good luck!

[Mancoca in reply to AnnNY]

Ann, Thank you so much for the help 😃

Karin

[Kalykrill]

Someone mentioned there are 3 drs they know of in the US. 2 in Colorado and where is the third one? Right now I am not approved to go see any dr I want because I am a disabled vet and have to see the VA drs at my hospital. Recently I have been in so much pain and no one wants to help me. My hemapologist sent me to the pain clinic, and my pain dr said right away that he was cutting my pain meds in half. He said narcotic pain meds don't work and they will try something else. I've been through this circle so many times, and narcotic pain meds work the best for me. I've tried many alternatives to no avail. I need an APS dr who might understand what I go through alot better than these drs at the VA who have not studied APS. I've had blood clots destroy my body before they ever found out about me having APS. My original dr who found this actually listened to what I was going through and helped me. But he retired years ago, and I've been through a few drs and they have all started over trying to help me and it failed every time. I am just getting tired of not getting the care I need. My INR suddenly dropped and is at 1.6, and they are adjusting my meds, but it hasn't gone over 2 in the past month and half, and I can feel the difference.