*I'm now at 15 mg warfarin 3 times a week and 15mg 4 times a week
* target INR is set at 3.5 with Fragmin injections if I fall below 2.5. ( this was set by Londons Lupus center, my Texas hematologist gets REAL uncomfortable and squirms and we negotiated at 3.25 )
*Ive never been able to maintain INR at range despite strict adherence to diet. Etc. warfarin raised/ INR falls. For about two weeks I get a nice homeostasis of 3.0-3.3. We were all very hopeful but sadly I returned to 2.3 and a 48 hour debilitating migraine and systemic rash.
*looks like I'm going to be a "Fragmin lady."
Question: the hematologist who is investigating my son is suggesting suppressing the immune system with either Rituxan or cytoxan? He thinks Rituxan. (He saw my rash yesterday when I brought my son in for testing and was shocked at my rash. I am Primary APS and negative for Lupus and others. )
Is immune system often suppressed with primary APS? Often my other doctors ask why I'm not being suppressed? ( I'm not tolerating plaquinil.)