wanting some advice: HI I was wondering... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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wanting some advice

deniseann profile image
3 Replies

HI I was wondering if anyone could help me, was looking up the name Dr Eliane Baguley and it lead me to you, interestaly after reading several of your post, my situation is much the same as many of your regarding been told my disease is stable !! when I know its not. Now been referred to Dr Baguley in hull . I just rang to say the appointment I made yesterday to my normal clinic,I wanted to changed and was told that the clinic I have been attending for over six years now is only been held every other week.But basically I would like to know anything about Dr Baguley that would help me understand the reason for the move to her clinic .

Thanks again. Deniseann .Wegners Granulomatosis /autoimmune sufferer

Wishing you all good health

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deniseann
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MaryF profile image
MaryFAdministrator

I believe this doctor does have experience regarding patients with Hughes Syndrome/APS. Have you been tested for this disease?

I enclose some medical papers: ncbi.nlm.nih.gov/pubmed/111...

ard.bmj.com/content/65/1/10...

MaryF

MaryF profile image
MaryFAdministrator

Yes, we have had other members seeing her successfully for Hughes Syndrome/APS, she is written up on here somewhere. MaryF

deniseann profile image
deniseann in reply to MaryF

Thank you ,will try and find what she wrote if that's ok. De x

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