I have an epal in the States with APS and Sjogrens. She is currently finding that she is clotting all over the place (nearly lost a finger recently) and that this always follows increased activity levels. But neither she nor her medics know why.
Does anyone have any explanations?
Written by
Coppernob
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Im the opposite-increased activity thins my blood. I have aps & ss. I have also noticed sudden change in temperature either hot or cold clots my blood until I get my meds on top again. I hope she & her medics get some control.
Interesting, I do know how important it is to stay hydrated with this condition, and your friend also has Sjogrens. I know people running marathons without our disease are more likely to have a clot if overheating without adequate hydration I remember Professor Hunt talking about this at one event I attended.
Would agree that I have always thought dehydration was a key player to allowing Hughes to show itself for me anyways..
Hydrate... Hydrate... Hydrate..................
The dehydration thing is real and not always obvious...I experience it and taken to managing it more closely..... increased activity + climate/ increased temperature change makes a huge difference...sometime just having the heat on the house for several days in a row can dehydrate me...might be worth watching sodium levels and electrolytes to monitor...
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