So I had my appointment with Dr Daniel Wallace in Los Angeles. He is an associate of Dr Hughes as they are both Lupus specialists.
From the Hughes support website I was under the impression that there was a "mild" APS that caused a myriad of symptoms but no thrombolic events. There have been people on this forum who claim they have been treated with heparin/Coumadin/plaquenil DESPITE never having a clot, and that Dr Hughes even treated patients with no thrombolic events AND were sero negative for APS or cardiolipin.
So I felt confident when I made this appointment, but when I discussed this with Dr Wallace today, he said that A) my positive cardiolipin was too low to be significant and that since I had no clotting event there was no reason to treat. He even went one step further and told me that Dr Hughes would never treat someone like me either. Even though when I emailed the clinic I was assured that they treated cases like mine.
It has been 12 years since the onset of my symptoms and 3 years since I've been researching APS/Hughes and looking for anything to help.
He blew away all my hopes in less than a minute, and it cost me $500.
I just don't understand this...