Antiplatelet vs anticoagulant therepy

[Wx_Doc]

Just began taking Eliquis (anticoagulant) for Afib. As a result was told to stop Plavix (antiplatelet) and 81 mg aspirin. Plavix had stopped migranes in the past. My question: Are migranes likely to reoccur?

[Wittycjt]

Do you have diagnosis of APS? Or only a fib?

[Wx_Doc in reply to Wittycjt]

Only A Fib.

[AnnNY]

If your migraines get better with Plavix, perhaps you should be tested for APS. It is my understanding of the articles of Dr. Hughes that I having such an improvement might be an indicator of APS. If you do have APS there really isn't any sure thing except maybe heperin. I was started on Aspirin, went to Plavix, and now I'm on Eliquis (although this seems to be used more in the US) and Plavix. So if you do have APS, Eliquis may work since it is supposed to be "stronger" than plavix.

[Wx_Doc]

Thank you

[Wittycjt]

Ann, how are you doing with being on the eliquis

[AnnNY]

I have a sinus infection which my PCP won't treat with antibiotics and some sort of virus that keeps coming back, so I haven't been feeling too great in general. Sometimes I do wonder if I would do better on warfarin, but I really prefer just taking pills, and also I do fall in the "controversial" category, so I feel lucky to be treated. I'm a little afraid some doctor is going to try to take away the medication. But since it clearly has improved my breathing, as well as other symptoms, so I'm hoping that is proof enough of micro clots.

Where did you end up going for an APS specialist?

[Lure2 in reply to AnnNY]

Hi Ann,

Have you still contact with dr Shofield or someone who understands APS. Do you still have a diagnose of also Lupus?

Does your Cardiologist know that you have got APS and have you done an Ecocardiography on your heart? I also wonder if you should have Warfarin or LMW Heparin if you still have neurological symptoms today and can you speak to your Cardiologist or APS-Doctor about that? You know I have had microembolie and today I have Pulmonary Hypertension but you may have other issues with your heart and as I am not aDoctor I do not understand it. I know you have had no "events" only chest-issues and probably micro-PEs as dr Shofield said.

But Take Good Care of yourself and Merry Christmas from

Kerstin

[JDMiller in reply to Lure2]

FYI: If you saw Dr Schofield, she is reestablished at her new office, IMMUNOe. It's so important to have an APS specialist that fully understands this autoimmune.

[AnnNY in reply to JDMiller]

I will be seeing her in her new office, which is closer to my brother's house.

[AnnNY in reply to Lure2]

Hi Kerstin--

Sorry it took so long for me to reply. I have been preparing to go to Colorado and then taking the arduous trip to Colorado, and now I'm here. I will see Dr. Shofield in a few days.

My cardiologist does know I have APS. Her comment was that she thought I was "too complicated for her." Not so reassuring. But since I have been on Eliquis and Plavix and synthroid I have less symptoms of palpataions and chest pain. My breathing has also improved, although in CO where I have suddenly gone from sea level to a mile high, I definitely get out of breath more easily, but I don't think that is so abnormal.

In the meantime, I'll be spending Christmas with two of my brothers, my nieces, my sister-in-law and dogs, so hopefully it will all be fun.

Merry Christmas to you, and thanks again for your help.

[Lure2 in reply to AnnNY]

So good that you are going to see Dr Schofield again!

I still just wonder if you have done an Echocardiography with doppler on hour lung/heart?

A Merry Cristmas over to Colorado from Stockholm!

[Wittycjt]

One of the Dr she from HSS based out of NY but I saw him in his office in upper northern NJ. Then he told me there was a "Dr Alpert" closer to me in Neptune. I was satisfied with the visit in Northern NJ so I did not go any further, he verified my doc is treating me correctly and that is all I really wanted to know. I can't remember his name or I would tell you. I just asked my hubby his name was Dr Markinsen. I had posted about it somewhere on here just after I was seen. I've had a stroke so I will have to wait out the studies before I can try Eliquis or the like🙁

[Lure2 in reply to Wittycjt]

The oral anticoagulant drugs are only for venus clots with an INR under 3.0!

I think prof Hughes told you IN PERSON the other day to keep an INR between 3.5 - 4.0 so why do you want to try Eliquis? That drug is not meant for your type of APS. You need an agressive treatment. Rivaroxaban is approved but only for those who are ok with an INR under 3.0

Kerstin

[JDMiller]

I have APS and migraines. Tried Plavix with no symptom relief. Went on Eliquis and my migraines cleared up.

[Wittycjt]

Calm down everyone, I was simply asking Ann how she was making out do to be switched to Eliquis! And I don't know how this other post even got here.. as it was from back in September I believe. I am not the OP-er👀

[Lure2 in reply to Wittycjt]

I apologize for this!

My English somtimes is not good enough to get the correct message sent as to sentiments etc (fine-tuning).

I thought you would try Eliquis even if prof Hughes had sent you a special message. You see for me prof Hughes is the only one who really knows our illness.

I wish you a Merry Christmas and hope you forgive me.

Kerstin in Stockholm

[Wittycjt in reply to Lure2]

Your forgiven.. wonderful holidays🎄🌲

[Wittycjt]

Talk about creating someone's/my anxieties🤣

[AnnNY]

Thanks for you answer Witty. I may have missed something hear during the arduous getting ready for the trip and taking the trip. The seats on UA feel like you are seating on wood for hours. So uncomfortable.

[Wittycjt]

Jet blue is a lot roomier just an FYI. Probably too late now. How long was the flight? I hope you remembered to get up and walk around, as well as, bed toes up and down. Goo luck with all outcomes and enjoy your holidays. Keep us posted? Cindy