I want to wish everyone a Happy New and Healthy 2017!
I am so happy that this site exists and that I can be here among all these wonderful people and for the fantastic work the Admins are doing for us all. They really care for us. I hope Professor Hughes will have a happy and healthy year.
I also hope for peace between the countries.
Thanks to everyone as we learn so much about this illness when we are posting here!
Finally I have admired all those beautiful pictures on "daily digest". I wonder where they come from? Good idea!
Kerstin in Stockholm
Written by
Lure2
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Thank you for your lovely message, I shall check back in, in the early hours, I am doing a gig on violin tonight and one tomorrow lunch time, so busy busy busy, but I am thankful to be well enough this time around to do them, as so many times I have not been able to. Wishing you peace, love and happiness now and for 2017. MaryF
I have to tell you Kersten, and Mary- I really don't think you quite understand how valuable you have been to me in these past few weeks. Ms apsnot fab as well. Not many people can say " I think you may well have played a role in saving my life" but I truly can.
As you know I don't have an APS specialist so I've truly been relying on you and your posts. I'm taking them to my doctors. That's when they realized I needed to find an actual specialist. The "list" from Hughes foundation general website for the American side has not been truely "pure" - could be that someone just had a good experience with them. Mary, a link you attached to me personally said "an error occurred " when giving me specialists here in the states.
I do know there is one in San Antonio ( I'm scheduled with her assistant I think Jan 18) but she is neurology and only focuses on brain aspects of APS (which does apply in every way to me) but I need, as we all do, a whole systems approach!
Great news! Please share!!! I found an actual APS specialist Dr. Erkan in New York -NYC proper. Fantastic educational background and teaching concurrently. Cutting edge trials with the suppression medication. You can look up his work/ publications. Upon reviewing my discharge summary from hospital and latest INR and Coumadin history struggles- he wanted to work me in immediately.(. Still no where near target) and severe systemic vascular pain and burning and relentless nausea...)
The soonest I can reasonably fly up from Texas is Jan 13th.
I'll keep you informed of all I learn in hopes of helping to "replenish the table" that you so tirelessly set forth to help nourish us in every way.
I've heard he's a great doctor. Does a lot of research. He's in hospital for special surgery in Manhattan. My sister went to him. He's excellent. Wish you the best and a happy healthy new year
Amen to that Kerstin and a very happy and healthy 2017 to you. Your posts are always interesting and I like to think of you in Stockholm, lots of snow?
Up in the north yes, but here in the middle of Sweden where Stockholm is situated we had yesterday the warmest New Year in 157 years! 10,3 degree Fahrenheit. So no snow now.
Last week we had very big differences in temperature between the north and south part of Sweden.
And I Will repeat: Happy 2017 to all, and thanks to administrators and regular posters who in a quiet, web based way, have spread so much assurance, peace, understanding, and yes, joy.
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Birth announcement :)
Update...
Back on community after a long while - just a catch, up, a moan, and a hello to all
