Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for October 2016

Anyone else with side effects from pregablin?

I was diagnosed with fibromyalgia on top of APS a few months ago. Started on Gabapentin but the side effects were so strong with dizziness and feeling spaced...

I was diagnosed with fibromyalgia on top of APS a few months ago. Started on Gab...

Kittybaker

•8 years ago

7 Replies

Renewing driving licence at 70

what have people with aps who are nearing 70 and have to get a new driving licence put about aps

what have people with aps who are nearing 70 and have to get a new driving licen...

MaryH

•8 years ago

4 Replies

Cognishield, nootropic?

Has anyone tried and if so are you also on warfarin?

Wittycjt

•8 years ago

4 Replies

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Cardiolipin IGG

Hi there...is it common for your cardiolipin igg numbers to move from positive to the normal range? What causes the numbers to move all over the place?

Hi there...is it common for your cardiolipin igg numbers to move from positive t...

Sunqui

•8 years ago

3 Replies

who do I see????

Morning All, Just a quick question. I have always been seen by a rheumatologist at Guildford whom I have to say was really good. I have recently moved to the...

Morning All, Just a quick question. I have always been seen by a rheumatologist ...

cami

•8 years ago

7 Replies

? Why my liver enzymes are elevated, anyone with same?

Is this a symptom of APS? Any ideas? My meds should not be doing causing this as far as I am aware. Anyone have this and what was the problem?

Is this a symptom of APS? Any ideas? My meds should not be doing causing this as...

Wittycjt

•8 years ago

8 Replies

Treatment Alternatives for Children/Teens with APS

My daughter was diagnosed with APS (I have it too). She has had migraines, dizziness, etc., and none of the medicines traditionally used has helped. What...

My daughter was diagnosed with APS (I have it too). She has had migraines, dizz...

etgard

•8 years ago

3 Replies

Next surgery -I have a date

Date for surgery . there was some members asking about bridging for surgery . I will be going in for a double surgery Nov. 10 TH . as this will be my third...

Date for surgery . there was some members asking about bridging for surgery . I ...

jetjetjet

•8 years ago

6 Replies

Brain fog

Brain foggy and feeling vacant plus bossed eye feeling have aps symdrome plus border line lupus . On hydroqloxaquine and since June Azathoiprine. Could...

Brain foggy and feeling vacant plus bossed eye feeling have aps symdrome plus bo...

Tim_Thorpe

•8 years ago

5 Replies

THIS KID MADE ME SMILE!

Yesterday my walk buddy came for a coffee with her 4 YO granddaughter. We were discussing Clexane injections as she had been 'helping' my friend give her...

Yesterday my walk buddy came for a coffee with her 4 YO granddaughter. We were ...

Ozchick

•8 years ago

3 Replies

Prevalence of Severe deep leg pain / bone pain.

I have APS and have been suffering from sever bone deep pain in my legs at night, not every night but frequently. The pain seems to start in the hip and...

I have APS and have been suffering from sever bone deep pain in my legs at night...

SoulRebel-APS

•8 years ago

22 Replies

Back in hospital trying to get proper testing...

I find myself back in th hospital after being discharged just 3 days ago. I have pulmonary edema and congestive heart failure. My PTINR are not therapuetic and...

I find myself back in th hospital after being discharged just 3 days ago. I have...

ZRHONDA

•8 years ago

11 Replies

How many strokes have you had due to APS?

Im just wondering if there is an average number of strokes APS patient's have. I have had literally 100's of TIA's and CVA's. However, I had two wholes in my...

Im just wondering if there is an average number of strokes APS patient's have. I...

SoulRebel-APS

•8 years ago

12 Replies

Blood results

Morning, In my last post I said that the hospital took a bank of blood tests. I was confirmed with APS a few years ago and now they are saying I test positive...

Morning, In my last post I said that the hospital took a bank of blood tests. I...

Lmb28

•8 years ago

2 Replies

Osteoarthritis

I have recently been diagnosed with osteoarthritis or something similar. The doc isn't sure if it's related to the APLS or lupus. Any others have similar...

I have recently been diagnosed with osteoarthritis or something similar. The doc...

Peanut

•8 years ago

7 Replies

Weird new symptom - quick feeling of blacking out and losing control

I don't have a diagnosis of Hughes but I do have a precursor disease - UCTD. I thought this might be a good place to ask my question. I have a new weird...

I don't have a diagnosis of Hughes but I do have a precursor disease - UCTD. I t...

TeganSara

•8 years ago

8 Replies

Samsung users

I seebon the e-mails that there is a program u can download to make it easier to use ur iPhone. Is there one for Android? As I am fond of my samsung but have a...

I seebon the e-mails that there is a program u can download to make it easier to...

SoulRebel-APS

•8 years ago

5 Replies

Lots of Problems: Resistance to Antibiotics

Hi all! I hope n Pray Y'all are HEALTHY& HAPPY! I can't say that now! Two weeks ago today I got a stye in my eye! Went to eye doc in practice who didn't know...

Hi all! I hope n Pray Y'all are HEALTHY& HAPPY! I can't say that now! Two weeks ...

Debbweb01

•8 years ago

9 Replies

Can Aspirin make a difference on cardiolipin / B2Glycoprotein test?

I was tested high for cardiolipin and B2Glycoprotein, mostly the B2Glycoprotein and wondered if taking aspirin and not eating as much vitamin would make my...

I was tested high for cardiolipin and B2Glycoprotein, mostly the B2Glycoprotein ...

chellsee40

•8 years ago

12 Replies

CIRCLES :(

So, I have been on here moaning before (twice) about not being able to make contact at all in between annual check ups at lupus unit the first time, I had been...

So, I have been on here moaning before (twice) about not being able to make cont...

donnabrain

•8 years ago

29 Replies

A round up from the newspapers

1. http://www.telegraph.co.uk/wellbeing/doctors-diary/doctors-diary-is-the-gluten-free-brigade-just-a-dietary-fad/ 2....

1. http://www.telegraph.co.uk/wellbeing/doctors-diary/doctors-diary-is-the-gl...

MaryF

Administrator•8 years ago

6 Replies

Advice please

Hi, over the summer I have been having a headache nearly every day and taking paracetamol which has eased them most times, with a few migraines thrown in, but...

Hi, over the summer I have been having a headache nearly every day and taking pa...

Joanneg6

•8 years ago

9 Replies

Warfarin to Rivaroxaban

Hi It's been a month or so since the results of the trial were published. Has anyone swapped yet and if so how are you getting on? For me Warfarin is working...

Hi It's been a month or so since the results of the trial were published. Has an...

MASuk10

•8 years ago

26 Replies

Bleeding into muscle.

Hi, I have am having bruising on my calf, which is bleeding into my muscle. My Dr has said that my blood is too thin and I need to reduce my dose, however if I...

Hi, I have am having bruising on my calf, which is bleeding into my muscle. My D...

LesJames

•8 years ago

6 Replies

Confirmation bloods

Im due my confirmation bloods to be done wednesday for the aps i was borderline when tested 3 months ago have been on asprin daily since but thought if im on...

Im due my confirmation bloods to be done wednesday for the aps i was borderline ...

Bubbles1977

•8 years ago

3 Replies

Back from Honkers!

Some odd things happened while I was away. I generally felt well and we did a lot of walking (averaging 20k steps each day) but on the last day I developed a...

Some odd things happened while I was away. I generally felt well and we did a l...

Ozchick

•8 years ago

6 Replies

Bowel problems and APS

Me again , has this fever . Shiver thing this week ,NRI up ,had cramps all week then thought I had a urine infection but then yesterday and today when I have...

Me again , has this fever . Shiver thing this week ,NRI up ,had cramps all week ...

amy1808

•8 years ago

3 Replies

Anne68

Hi bit worried nri range 3-4 and has gone up to 5, I have had high temp and shivering this week, can that cause nri to go up ?

Hi bit worried nri range 3-4 and has gone up to 5, I have had high temp and shi...

amy1808

•8 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2016

Anyone else with side effects from pregablin?

Renewing driving licence at 70

Cognishield, nootropic?

Cardiolipin IGG

who do I see????

? Why my liver enzymes are elevated, anyone with same?

Treatment Alternatives for Children/Teens with APS

Next surgery -I have a date

Brain fog

THIS KID MADE ME SMILE!

Prevalence of Severe deep leg pain / bone pain.

Back in hospital trying to get proper testing...

How many strokes have you had due to APS?

Blood results

Osteoarthritis

Weird new symptom - quick feeling of blacking out and losing control

Samsung users

Lots of Problems: Resistance to Antibiotics

Can Aspirin make a difference on cardiolipin / B2Glycoprotein test?

CIRCLES :(

A round up from the newspapers

Advice please

Warfarin to Rivaroxaban

Bleeding into muscle.

Confirmation bloods

Back from Honkers!

Bowel problems and APS

Anne68

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