Advice please

[Joanneg6]

Hi, over the summer I have been having a headache nearly every day and taking paracetamol which has eased them most times, with a few migraines thrown in, but am feeling so tired lately, and have no energy - have seen my haematologist and he's referred me to neurology to get checked over - any advice of good medication or help gratefully received, thank you

[Joanneg6]

Forgot to mention I keep feeling dizzy but It's not like vertigo but just can't explain how it feels to the doctor, does anyone else suffer like this?

[MaryF Administrator]

Hi, you need to be seeing a specific specialist who understands Hughes Syndrome/APS I am presuming you have been properly tested for this, let us know where you are so we can help with finding you the right medical professional, which will not only help you, but also your GP. MaryF

[Joanneg6]

Thanks so much for your replies, I am in Stockport so any help much appreciated

[MaryF Administrator in reply to Joanneg6]

NHS Specialists

Professor Imelda Bates

Consultant Haematologist

Royal Liverpool Hospital

Prescott Street, Liverpool

Merseyside L7 8XP

Telephone: [phone]

Professor Ian Bruce

Rheumatology Clinical Lead

The Kellgren Centre of Rheumatology

Manchester Royal Infirmary

Oxford Road, Manchester M13 9WL

Telephone: [phone]

Dr Feroza Darwood

Consultant Obstetrics and Gynaecology

Department of Obstetrics and Gynaecology

Liverpool Women's Hospital

Crown Street, Liverpool

MerseysideL8 7SS

Telephone: [phone]

Professor Charles Hay

Consultant Haematologist

Department of Haematology

Manchester Royal Infirmary

Oxford Road, MachesterM13 9WL

Telephone: [phone]

Dr Rachel Gorodkin

Consultant Rheumatologist

Department of Rheumatology

Manchester Royal Infirmary

Oxford Road, MachesterM13 9WL

Telephone: [phone]

Professor Vanessa Martlew

Consultant Haematologist

Department of Haematology

Royal Liverpool University Hospital

Prescot Street, Liverpool

MerseysideL7 8XP

Telephone: [phone]

Dr StephenMcKew

Consultant Haematologist

Department of Blood Sciences

Countess

Chester Hospital

Liverpool Road

Cheshire CH2 1UL

Telephone: [phone]

Dr Andrew Will

Clinical Director

Deparment of Paediatric Hematology

Royal Manchester Children's Hospital

Oxford Road, Manchester M13 9WL

Telephone: [phone]

MaryF

[Joanneg6 in reply to MaryF]

Thanks so much, have GP appointment on Friday so will ask for a referral then, I feel an awful lot better with all the support I have received today, thanks again, I'll keep you informed x

[Lure2]

I am glad that you have got two very good answers.

I suggest you read "Sticky Blood Explained" by Kay Thackray. Also cheque your blood pressure as it must not stay too high with APS.

Best wishes from Kerstin in Stockholm

[Yllek]

I'm sorry you're suffering. These symptoms do seem to be typical APS symptoms when you're not properly anticoagulated.

I'm seeing an APS specialist in November (my rheumy retired) who is in Liverpool so not to far from you. Her name is Prof Martlew and is recommended on the Hughes Syndrome Website. It sounds like you need a referal quickly from your GP to an APS expert.

Good luck X

[Joanneg6 in reply to Yllek]

Thanks so much, got an appointment on Friday with GP so hopefully get a referral

[Joanneg6]

Been to GP who has confirmed she will be referring me to an APS Specialist, I cannot thank you enough for all your help 😀