I have recently been diagnosed with osteoarthritis or something similar. The doc isn't sure if it's related to the APLS or lupus. Any others have similar issues? My main problems are with the joints in my hands.

Methotrexate has been suggested, but as I'm already in warfarin and a few other drugs, I am reluctant to throw another pill into the mix unless it's essential!

7 Replies

  • HI, many of us have various forms of arthritis, however make sure your Rheumatologist or any specialist managing your Hughes Syndrome/APS is in the picture with a decision on a new drug. MaryF

  • Yes, I have arthritis in both knees and spine. Only 45. Rheumo referred me to osteoarthritis specialist too. Hope you get the treatment that helps you.

  • I get random joint pain (mostly knees and hands) and unable to take Celebrex, Ibuprofen or similar because of possible bleeds. Some days I need help to get out of a chair but it's weird that it can disappear completely in a few days. The rheumy thinks it's inflammation sort of like a flare. Has no rhyme or reason as to what set it off but better if I keep up my walks.

  • I'm currently being investigated for osteoarthritis in addition to APS and fibro. At the moment I'm just taking my regular painkillers after having a bad reaction to the hydroxychloroquine. I saw the nurse specialist last week but she wanted to talk to the consultant before making any suggestions as to treatment. My pain is my hands and my hips so I'm hoping they come up with a plan soon. Good luck

  • I am curious as to what type of pain mgmt, specifically the name of the drugs that others can take with a goal of 3.5-4.5 ptinr. I have taken warfarin since 2011after a PTE surgery removing 18 clots in my lungs. I currently take low dose opiates and some Tylenol. I can no longer take Plaquenil or any nsaids because my inr has gotten out of control. I also have the lupus factor, and now lupus (sle)as well as APS. My hematologist will not approve self testing and even with 3.5-4.5 Inr goal warfarin is the only anticoagulant prescribed unless heparin or lovenox for bridging after a procedure.



  • Physical therapy allowed me to postpone my hip surgery for 10 years. Obviously, I highly recommend consulting with a physical therapist. Often, there are minor issues with the way one walks, or stands, or sits which produce inflammation in affected joints and later, arthritis. Having these posture issues observed and Corrected can treat the root cause of the problem.

  • Even a thick wallet in back pocket can throw your spine off and cause pain.

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