I had Lymes disease twice and a flu shot prior to being diagnosed w/ APS. Anyone else?

[Wittycjt]

Trying to find a connection prior to diagnosis. Anything, anyone?

[CormorantWatcher]

Ulcerative Colitis, which made me susceptible to clots. Three DVTs and a LE and bi-lateral PE, some when no longer affected by UC led to them checking for APS

[Yllek]

Well I have a theory about when my APS was triggered. I was fine with no symptoms before I was 23. I then got the Epstein Barr Virus and Glandular Fever and was in hospital very poorly. I think this was my trigger.

It was 3 months after this I had my first miscarriage and all my subsequent pregnancy problems. In hindsight I have had many aches and pains that I have dismissed until my body couldn't take any more. I developed neuro symptoms and TIAs which eventually led to my diagnosis this year aged 39.

Since the Drs didn't initially think anything was wrong even when having awful neuro symptoms and developing avascular necrosis in both hips I don't think I would have been diagnosed any sooner by going to the Dr prior to things getting serious!

I'll be interested to see if others think they can pinpoint when theres began.

Kelly x

[Manofmendip in reply to Yllek]

Kelly

I agree with you, I had EB Virus and glandular fever when I was 27 and even Prof Hughes said he feels that was my trigger.

Dave

[Yllek in reply to Manofmendip]

Ahh that's good to know! It probably was the start of it for me then.

Thanks! X

[MaryF Administrator]

I had glandular fever aged 7! I think we all have triggers, what a mixed bag we all are. MaryF

[Aktop]

I believe my trigger was Shingles, had it one month prior to getting bloods clots and eventually diagnosed with APS. I believe we need to heal the trigger to heal. Read Medical Medium, Secrets of mystery illness by Anthony Williams. I believe he holds the answers.