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    Sticky Blood-Hughes Syndrome Support
    8,095 members • 8,333 posts

    Low dose naltrexone, has anyone heard or used this FDA approved drug?

    This drug is supposed to be a great drug for autoimmune diseases even some cancers and hiv but so far I've asked 2 doctors about it and they haven't heard anything about it. I've read on it and would love to try it, hopefully the rheumatologist I see in January will know something. If anyone has any more info or tried it I would love to hear from you.

    Thanks

    Amy

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    Hi, Yes I am on it, successfully for a number of years now. You will need to find a doctor who understands this drug, otherwise they can only relate to it in its high dose, The LDN Research Trust is a good starting point. MaryF

    Reply

    Oh thank you Mary, with having crohns disease and some lupus symptoms I think it would help. Do you feel better since taking it?

    Amy

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    It would help, presumably with those you are already gluten free? MaryF

    Reply

    Yes, I'm gluten free

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    Do check it out, but do make sure that you main consultant is tied in with anything new you are doing, good luck. MaryF

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    Yeah, they haven't heard of it and being on warfarin, I don't about drug interactions.

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    The LDN Research Trust carries information for doctors and can advise on that. MaryF

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    Never heard of it but interested. Keep us posted thanks

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    Here's Dr Chris Steele talking about it on Youtube (below). If the link doesn't work just google it and it will come up top of the list. It isn't usually prescribed - as you say Drs don't know about it and it's unlicenced/ offlist. When you hear what Dr Steele says it's absolutely shocking that this is not widely available: it works and it's safe. Unlike most drugs.

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    Its not researched, licensed or available on the NHS because BIG PHARMA cant make any money with it! Simple as that - it would stop them making money on some of their own drugs!

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    I've been through so much these last 3 years because of medications, if only I had known about this drug with way less side effects, i wouldn't probably have all these health problems flaring up!! Do you take this drug?

    Thanks Amy

    Reply

    Thanks for the information, do you take this medicine?

    Amy

    Reply

    Not me, no way to get hold of it.

    Reply

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