Low dose naltrexone, has anyone heard or used this FDA approved drug?

[determinedandstrong]

This drug is supposed to be a great drug for autoimmune diseases even some cancers and hiv but so far I've asked 2 doctors about it and they haven't heard anything about it. I've read on it and would love to try it, hopefully the rheumatologist I see in January will know something. If anyone has any more info or tried it I would love to hear from you.

Thanks

Amy

[MaryF Administrator]

Hi, Yes I am on it, successfully for a number of years now. You will need to find a doctor who understands this drug, otherwise they can only relate to it in its high dose, The LDN Research Trust is a good starting point. MaryF

[determinedandstrong in reply to MaryF]

Oh thank you Mary, with having crohns disease and some lupus symptoms I think it would help. Do you feel better since taking it?

Amy

[MaryF Administrator in reply to determinedandstrong]

It would help, presumably with those you are already gluten free? MaryF

[determinedandstrong in reply to MaryF]

Yes, I'm gluten free

[MaryF Administrator in reply to determinedandstrong]

Do check it out, but do make sure that you main consultant is tied in with anything new you are doing, good luck. MaryF

[determinedandstrong in reply to MaryF]

Yeah, they haven't heard of it and being on warfarin, I don't about drug interactions.

[MaryF Administrator in reply to determinedandstrong]

The LDN Research Trust carries information for doctors and can advise on that. MaryF

[Nanny23]

Never heard of it but interested. Keep us posted thanks

[Frodo]

Here's Dr Chris Steele talking about it on Youtube (below). If the link doesn't work just google it and it will come up top of the list. It isn't usually prescribed - as you say Drs don't know about it and it's unlicenced/ offlist. When you hear what Dr Steele says it's absolutely shocking that this is not widely available: it works and it's safe. Unlike most drugs. youtube.com/watch?v=YmUa2gL...(Not working as expected?)

[determinedandstrong in reply to Frodo]

Thanks for the information, do you take this medicine?

Amy

[Frodo in reply to determinedandstrong]

Not me, no way to get hold of it.

[determinedandstrong]

I've been through so much these last 3 years because of medications, if only I had known about this drug with way less side effects, i wouldn't probably have all these health problems flaring up!! Do you take this drug?

Thanks Amy

[Tickytot]

I have been on it for 18 months to help lower my thyroid antibodies and it is working. Don't have my APS diagnosis yet but I'll have to see if it lowers those numbers as well.

[Bexxa in reply to Tickytot]

I would be very interested to know if it lowers your APS antibodies! Please be sure to post follow up!

[Lure2 in reply to Bexxa]

Hi Bexxa,

I see you have joined us today so I would like know if you also have APS like all of us have here?

Also you have answered an 3 year old question.

I am triple positive with persistantly high antibodies all the time but my Specialists have never mentioned any drug to lower them. It is important how you feel and that they know of your symptoms and keep your anticoagulation steady and at a suitable INR though.

Best wishes from Stockholm

[Apspain]

I have heard of naltrexone its a receptor blocker. its used in drug and alcohol addiction/cravings. How does this work against autoimmune? Do you have it as a tablet or an implant. Is it working as a pain receptor?

[HollyHeski Administrator in reply to Apspain]

Hi, this is a very old post - I suggest you put your question on as a new post?