Heart rate: Has anyone suffered with an... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,413 members10,622 posts

Heart rate

Danni33 profile image
14 Replies

Has anyone suffered with an extremely fast heart rate. I have had this several times and was admitted one of them, where Bloods showed a high rate of troponin which is an enzyme showing that the heart has had some type of episode.

Nothing has been arranged to see a cardiologist and I had an attack a night ago which woke me up and I couldn't move.

I have had two strokes this year.

I am currently taking 24mg of Warfarin and I am having venous testing as capillary testing was given off a false reading. My last reading was 1.0 !

I am seeing an APS specialist at St Thomas on 15 January and I'm hoping she will be able to answer most of question

Many thanks

Written by
Danni33 profile image
Danni33
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Lure2 profile image
Lure2

Yes, I do hope she will help you as it is quite unacceptable to have had two strokes this year, APS and such a low INR most of the time.

I Think you should not wait till January 15 if your INR is very low. You should have help with the INR before that date.

When you see the APS-Specialist have all questions written down. Take your time. Also if you have bloodtests done earlier take a copy with you and a short story of what has happened earlier as to other doctors and drugs. Two strokes this year!!

Please let us hear how it goes for you and Good Luck on January 15!

Kerstin in Stockholm

Lure2 profile image
Lure2

When I reread your question I think you should go to an Emergency-clinic at once! No I have not had fast heartbeats as I am on Betablockers for high bloodpressure.

Kerstin

GinaD profile image
GinaD

I have had a fast heart rate all my life and I'm pretty sure mine has nothing to do with APS and more to do with all those antibiotics my TB recovered Mom gave me when I was growing up. I have not treated the fast rate yet, but as I age my doctor has suggested that eventually I should start a heart regulating med like topo ax.

Good luc k, and yes, I agree that you should try for an earlier consultation.

Gina

Lure2 profile image
Lure2 in reply toGinaD

Hi Gina,

What does TB stand for please?

They talk here on TV about the bad stormy weather around Texas and other States. Is it OK in St Albans?

Kerstin

GinaD profile image
GinaD in reply toLure2

Tuberculosis. My mom was one of the first to curr on antibiotics.

Our weather has been safe but scarry crazy with temps in the 70s F. We have a lot of rain but so far only minor flooding.

InSpain profile image
InSpain

Hi Danni33. Yes I do. I was admitted into casualty (observation) with a heart rate of 186 beats per minute at the beginning of December. I felt really ill. Also with pain in my jaw and between my shoulder blades. I alreay take beta blockers for arrythymia and they used these to very gradually stabilise my heart rate. It took 6 hours. I already have aortic insufficiency (a leaking heart valve) but they gave me a further diagnosis of Hemodynamic Angina after this last espisode. I have an appointment on the 11th of Jan to see what can be done. When I find out more I'll let you know.

Interestingly, my INR was 3.3 and the doctor on duty in observation felt that the attack was more likely related to my previous stroke and TIA's and not the level of my INR. He said that electrical messages that the brain sends to the heart can become confused when someone has a history of TIA's or strokes, depending which part of the brain has been affected. For a doctor in casualty he was very well informed!! He also recommended that if this should happen again to take 2 of my prescribed beta blockers and to get to casualty as soon as possible.

I will be very interested to see what your Doctor at Tommies says. Let me know won't you? These episodes are very frightening. Don't be put off if you feel ill go straight to A & E.

Love from here InSpain. xxx

Ps: PM me if you want a chat. xxx

Danni33 profile image
Danni33 in reply toInSpain

Many thanks for kind reply. I will keep you informed about my appointment

Regards

MaryF profile image
MaryFAdministrator in reply toInSpain

They will confirm that you are of course 'Wonder Woman' at your next appointment! MaryF

InSpain profile image
InSpain in reply toMaryF

Well either Wonder Woman, or Wierd Woman!!!! 😆 xxx

MaryF profile image
MaryFAdministrator in reply toInSpain

No, definitely her: youtube.com/watch?v=IhktTPg...

MaryFx

InSpain profile image
InSpain in reply toMaryF

😂😂😂

MaryF profile image
MaryFAdministrator

I hope your appointment goes well, let us know what they say, and best of luck. If this happens in the meantime, I would go to hospital. MaryF

Anon75 profile image
Anon75

This is not a diagnosis but a hr >100 and elevated Trop could be a PE

daisyd profile image
daisyd

Hi Danni hope you went to the accident and emergency department, if I had symptoms like you have been having I wouldn't think twice about calling an ambulance, hope you have managed to get it sorted out xxxx

Not what you're looking for?

You may also like...

Heart problems and APS

I never thought much about how Sticky Blood can affect the heart. Without a family history of heart...
orygun66 profile image

Which self testing machine?

Hi All, Went to see my rheumatologist today. He says that he wants me to stay on Warfarin as,...
stillwaiting profile image

Mechanical heart valve

Hi there Does anyone on this site have a mechanical heart valve, and if so has it calcified?...
hihannula profile image

Hughes syndrome and congenital hole in heart

Hi I'm new to this site , 65 recently retired. 7 years ago I was told I had sticky blood which...
terrim profile image

Could this be APS? From vertigo to superficial vein thrombrosis to Splinter Haemorrhage to heart palpitations and more...

Hello I am new here. I have been having alot of health issues in the last couple of months with no...
Misg profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.