My APS has become very symptomatic in the past couple of years. Three years ago, my blood disorder played a fairly insignificant role in my life.
I'm not sure what changed, but now I have cronic migraines and arthritis due to my hypermobility. I also have nerve issues. Worst of all, I have terrible stomach issues. Now, every time I eat, my body essentially goes into shock. At first, I thought all of these health problems had no unifying cause, but studying about Hughes Syndrome, I've found that it could be the root to several of my problems.
My question to everyone is whether anyone else knows if this disorder is progressive?
Also, none of my doctors know how to treat me. I'm now up to five specialists for my blood disorder alone and only a few of them have even heard of Hughes Syndrome, let alone how to treat it. Can anyone recommend any information that is specifically designed to educate my doctors?