THANKYOU to everyone on this site - Hughes Syndrome A...

Hughes Syndrome APS Forum

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THANKYOU to everyone on this site

Nanny23 profile image
7 Replies

Hi I would like to thank everyone on this site for educating me. My sister was recently diagnosed with APS. I did not understand what she was going through. Thanks to this site I have learned so much. THANKYOU. YOU ALL HAVE HELPED ME HELP MY SISTER DEBBIE. I wish everyone a merry Christmas and happy new year. God bless you all.

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Nanny23 profile image
Nanny23
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7 Replies
MJ23 profile image
MJ23

Thank you for caring about your sister and finding out more. None of my family has inquired about my APS and they all think because I don't look sick........I'm simply not sick. So thank you for showing her the love and support she will need!! -Mindi

Ozchick profile image
Ozchick in reply to MJ23

That's really nice. My sister is also great support and my bestie always tells me I'm the healthiest looking sick person she knows!

Manofmendip profile image
Manofmendip

Thank you, I'm glad we have been a help to you both. Dave

Lure2 profile image
Lure2

Thank you Nanny for telling us this!

We all try to help eachother on this site. I have learned so much about APS during my years here and also my school-English has improved!

Once again; have you read "Sticky Blood Explained" by Kay Thackray? She writes about how it is to live with this illness. I wish people read that book as it is good for relatives also.

A Merry Christmas to You and to your sister Debbie from Kerstin in Stockholm!

Debbweb01 profile image
Debbweb01 in reply to Lure2

Yes have read it in one night and gave it to Nanny 23! She only read Chapter 14 about Family Support , cuz I told her to! My Nephew Brian is a PA/ Physicans Assistant! He's very close to being a doctor! He can write scripts and now he shows the doctors how to putt implants in their patients hearts, such as pacemakers, defribulaters, ect...ect... Since I've been DX'd with APS he has had a complete turn around! He talks to me now about my health issues , whereas b4 he'd say they operated on me for no reason! Now a big change! Even though my current Hemotologist does not know how to treat MY APS, I'm forever in his debt for finally diagnosing me! I hope he agrees to still help me with my other rare sludgy blood disorder PV/polycythemia Vera! Thanks again KERSTIN and all the admins and everyone on this forum helping me and helping my sissyLynn/NANNY 23! Happy And Healthy New Year to Y'All!!! Godspeed!!!

MaryF profile image
MaryFAdministrator

Thanks for the great feedback, have a lovely Christmas. MaryF

Debbweb01 profile image
Debbweb01

Hi there! Thx Nanny 23 You're support has been unwavering! I appreciate everything you've done for me! Understanding me most important to me! I'm not crazy, I'm not psycosimatic! I know u never thought so , but your family has! I don't care Wat they think cuz I no you'll set them straight!

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