Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for November 2015

Joint pain

Hi all. Despite now being settled on warfarin inr 3-4 and hydrocychloroquine, I have developed some new symptoms. Memory fog with my inr at 3.6, pain back of...

Hi all. Despite now being settled on warfarin inr 3-4 and hydrocychloroquine, I ...

Fusch

•9 years ago

19 Replies

Hello everyone. I was diagnosed with SLE 20 years ago and last week with LA.

After much reading on line I am a bit confused. Is La, anti phospholipid and Huges all the same? Any help to clarify this for me would be appreciated. Thank you

After much reading on line I am a bit confused. Is La, anti phospholipid and Hug...

Susanlouise

•9 years ago

5 Replies

A round up of articles off the press

1. http://www.dailymail.co.uk/health/article-3319616/Up-600-stillborn-babies-year-dying-needlessly-blunders-doctors-midwives.html 2....

1. http://www.dailymail.co.uk/health/article-3319616/Up-600-stillborn-babies-y...

MaryF

Administrator•9 years ago

5 Replies

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APS specialist in Hull?

Hi all Don't post often but do read all the posts, people a lot more knowledgable than I am! After being seriously ill earlier this year, and spending 10...

Hi all Don't post often but do read all the posts, people a lot more knowledgab...

judes

•9 years ago

6 Replies

Is it possible to only test positive for APS in pregnancy?

I tested positive for APS on the first blood test, this was whilst I was pregnant. The pregnancy resulted in another miscarriage and I then had a second blood...

I tested positive for APS on the first blood test, this was whilst I was pregnan...

Esmes2013

•9 years ago

6 Replies

Just lettting you know!

Earlier this week I am atmitted at my hospital. Inflamation in my lung AND an aneurysm at my aorta in a difficult area to operate. Things does not look good....

Earlier this week I am atmitted at my hospital. Inflamation in my lung AND an an...

sanderotter

•9 years ago

3 Replies

Hopeful referral to APS specialist

Hi all, thank you for your help and answers about referral to an APS specialist. After a long route of being sent from doctor to anticoagulant clinic to self...

Hi all, thank you for your help and answers about referral to an APS specialist....

Vespa1

•9 years ago

8 Replies

Thyroid Tests

I have been trying for years to get my Thyroid tested more thoroughly and Prof Hughes agrees that this would be worthwhile. My APS consultant at Ninewells in...

I have been trying for years to get my Thyroid tested more thoroughly and Prof H...

AvsG

•9 years ago

8 Replies

brain aneurysm surgery and warfarin

My brain aneurysm saga: As in my prior posts, I was diagnosed with a 3mm brain aneurysm in Sept. and was scheduled for a 'cerebral artery angiogram' for Nov....

My brain aneurysm saga: As in my prior posts, I was diagnosed with a 3mm brain ...

mozelle

•9 years ago

23 Replies

Professor Graham Hughes' Blog October 2015

October 2015 Late October. The countryside is ablaze with colour. This autumn’s technicolour display is exceptional. For the past two months I have been on...

October 2015 Late October. The countryside is ablaze with colour. This autumn’s...

MaryF

Administrator•9 years ago

4 Replies

APS on Plavix...should I switch to Coumdin

Good Day Everyone. I have been diagnosed with APS for a while now (cannot remember exact date). I have had many issues. I have had several strokes and...

Good Day Everyone. I have been diagnosed with APS for a while now (cannot remem...

LauraKlumpp

•9 years ago

11 Replies

hemorrhoid surgery

has anyone had this surgery since having APS? how risky is it and how long to heal, I also have lupus and am on methotrexate

has anyone had this surgery since having APS? how risky is it and how long to he...

edgewater100

•9 years ago

6 Replies

Swollen glands etc

Really struggling at moment. Feel totally exhausted- swollen glands in neck, arm pits and behind knees. Also pins and needles in fingers ( this is new) Any...

Really struggling at moment. Feel totally exhausted- swollen glands in neck, arm...

NBtired

•9 years ago

3 Replies

heat rash- not livedo reticularis but similar

So after miscarriage #1 this rash appeared when I had been out in the sun and it would appear any time my skin got hot- even with clothes . Then I went on...

So after miscarriage #1 this rash appeared when I had been out in the sun and it...

MStiff

•9 years ago

3 Replies

Aps

I just wanted to know if you all are on blood thinner? I have aps and had a pulmonary embolism, I'm not on medication.

I just wanted to know if you all are on blood thinner? I have aps and had a pulm...

murphylotte

•9 years ago

15 Replies

Hughes disease - Auto Phoslipid Syndrome

Hello everyone, cannot find MaryF Administrator on here who has helped me so much along with everyone else. Not been on here s while.....low immune system,...

Hello everyone, cannot find MaryF Administrator on here who has helped me so muc...

Salstar

•9 years ago

21 Replies

Worried about going under...

Hi everyone, I'm due for a colonoscopy on Monday and are freaking out. Just to give you a little back story... I've had Crohn's disease since 1999. I've had...

Hi everyone, I'm due for a colonoscopy on Monday and are freaking out. Just to g...

Crogers

•9 years ago

20 Replies

Meds advice. ..?

Hi everyone have been struggling this last 3mths with the amount of meds I am taking for not only APS but fibromyalgia and spine problems I have now gained...

Hi everyone have been struggling this last 3mths with the amount of meds I am ta...

AngelinaN

•9 years ago

13 Replies

APS and statins

I know there was a post about this recently but I can't find it. I have been prescribed statins today as I have high cholesterol despite not being massively...

I know there was a post about this recently but I can't find it. I have been pre...

kittymum78

•9 years ago

18 Replies

Ground Breaking Hughes Syndrome/APS Research on early miscarriage VIA HSF Facebook Page

Ground-breaking APS research has been reported in Nature. Jane Salmon MD and colleagues appear to have solved the mystery of why women with APS have early...

Ground-breaking APS research has been reported in Nature. Jane Salmon MD and col...

MaryF

Administrator•9 years ago

2 Replies

A P S .

Could A P S cause bowel spasms at night.

silemoran

•9 years ago

2 Replies

Which specialist should we insist on seeing?

We are going to the doctors to insist we see a specialist with regards to my husbands APS. Evidently he saw one in 2007! If we did we were certainly not made...

We are going to the doctors to insist we see a specialist with regards to my hus...

Vespa1

•9 years ago

11 Replies

Trigeminal neuralgia and hughes syndrome

Hello, Recently I was diagnosed with trigeminal neuralgia, my question is if it is posibile to be a connection between Hughes syndrome and trigeminal...

Hello, Recently I was diagnosed with trigeminal neuralgia, my question is if it...

crif

•9 years ago

4 Replies

APS groups

Hi, does anyone know of a support group in the midlands? This would be so wonderful Yours hopefully kath

Hi, does anyone know of a support group in the midlands? This would be so wonder...

Vespa1

•9 years ago

2 Replies

Interesting article

http://emjreviews.com/wp-content/uploads/Antiphospholipid-Syndrome-Novel-Therapies.pdf

http://emjreviews.com/wp-content/uploads/Antiphospholipid-Syndrome-Novel-Therapi...

Fusch

•9 years ago

3 Replies

Terry1968

How to treat stomach cramps from Hughes syndrome x

terry1968

•9 years ago

3 Replies

APS and Morphea

Around 25 years ago I was diagnosed with the skin condition Morphea for which I received variou courses of treatment,whilst I still have the characteristic...

Around 25 years ago I was diagnosed with the skin condition Morphea for which I ...

NicBay

•9 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2015

Joint pain

Hello everyone. I was diagnosed with SLE 20 years ago and last week with LA.

A round up of articles off the press

APS specialist in Hull?

Is it possible to only test positive for APS in pregnancy?

Just lettting you know!

Hopeful referral to APS specialist

Thyroid Tests

brain aneurysm surgery and warfarin

Professor Graham Hughes' Blog October 2015

APS on Plavix...should I switch to Coumdin

hemorrhoid surgery

Swollen glands etc

heat rash- not livedo reticularis but similar

Aps

Hughes disease - Auto Phoslipid Syndrome

Worried about going under...

Meds advice. ..?

APS and statins

Ground Breaking Hughes Syndrome/APS Research on early miscarriage VIA HSF Facebook Page

A P S .

Which specialist should we insist on seeing?

Trigeminal neuralgia and hughes syndrome

APS groups

Interesting article

Terry1968

APS and Morphea

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