Trigeminal neuralgia and hughes syndrome

[crif]

Hello,

Recently I was diagnosed with trigeminal neuralgia, my question is if it is posibile to be a connection between Hughes syndrome and trigeminal neuralgia, and if someone has this.

I'm not sure I whether or not if I have Hughes syndrome because I have a positive blood test of lupus anticoagulant and a negative one.

I will repeat it these days, if I get negative means that I don't have Hughes syndrome?

For 4 years I have migraines with aura without headache but lately they have become much more frequent, even twice a week. In the same period appeard NT. This year I had also a miscarrige at 6 weeks.

For the moment I take baby aspirin for hughes and carbamazepine for TN.

Thank you and sorry for my English

[MaryF Administrator]

Hi autoimmune disease can appear with B12 deficiency, and with any autoimmune disease, please note this article, I also always encourage our member to check their B12 as well as iron, you do not have to have low iron in order to have low B12 although they can often occur together.

omicsgroup.org/journals/low...

ncbi.nlm.nih.gov/pubmed/169...

Martyn Hooper's book is a good read, and I heard him speak at The Thyroid UK Conference, he is not a doctor but he speaks well and knows his subject inside out.

MaryF

[Katariina]

Hi Crif,

My daughter has both Trigeminal Neuralgia and Hughes (as well as Sjogrens, Thyroid etc). She is prescribed Pregabalin for the Trigeminal Neuralgia.

Katariina

[kittymum78]

I have a definite diagnosis of Hughes syndrome and I also suffer with trigeminal neuralgia. I wouldn't like to say that there is a link but I feel that there is something in the body chemistry that perhaps increases the risk of it

[emmaj]

I have it too x