Trigeminal neuralgia and hughes syndrome - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Trigeminal neuralgia and hughes syndrome

crif profile image
crif
4 Replies

Hello,

Recently I was diagnosed with trigeminal neuralgia, my question is if it is posibile to be a connection between Hughes syndrome and trigeminal neuralgia, and if someone has this.

I'm not sure I whether or not if I have Hughes syndrome because I have a positive blood test of lupus anticoagulant and a negative one.

I will repeat it these days, if I get negative means that I don't have Hughes syndrome?

For 4 years I have migraines with aura without headache but lately they have become much more frequent, even twice a week. In the same period appeard NT. This year I had also a miscarrige at 6 weeks.

For the moment I take baby aspirin for hughes and carbamazepine for TN.

Thank you and sorry for my English :)

Written by
crif profile image
crif
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MaryF profile image
MaryFAdministrator

Hi autoimmune disease can appear with B12 deficiency, and with any autoimmune disease, please note this article, I also always encourage our member to check their B12 as well as iron, you do not have to have low iron in order to have low B12 although they can often occur together.

omicsgroup.org/journals/low...

ncbi.nlm.nih.gov/pubmed/169...

Martyn Hooper's book is a good read, and I heard him speak at The Thyroid UK Conference, he is not a doctor but he speaks well and knows his subject inside out.

MaryF

Katariina profile image
Katariina

Hi Crif,

My daughter has both Trigeminal Neuralgia and Hughes (as well as Sjogrens, Thyroid etc). She is prescribed Pregabalin for the Trigeminal Neuralgia.

Katariina

kittymum78 profile image
kittymum78

I have a definite diagnosis of Hughes syndrome and I also suffer with trigeminal neuralgia. I wouldn't like to say that there is a link but I feel that there is something in the body chemistry that perhaps increases the risk of it

emmaj profile image
emmaj

I have it too x

You may also like...

Dementia and hughes syndrome

I have Hughes syndrome and raynards and high cholesterol high blood pressure fybromyalgia severe...

Hello I have Hughes Syndrome!

I found out around 5 years ago that I had Hughes Syndrome, this was due to me reading a article in a

Hughes syndrome n migrains

i have hughes syndrome and very bad migrains makes me feel very unwell and weak, they last along...

AIP Diet & Hughes Syndrome

diets with improvements in auto-immune diseases/syndromes. However, in most of the more commonly...

Hughes Syndrome Study

age of 18 and 60, who have been diagnosed with Hughes Syndrome for at least a year, who are taking...