Hi all, thank you for your help and answers about referral to an APS specialist. After a long route of being sent from doctor to anticoagulant clinic to self referral back to the doctor, hopefully our doctor is now going to write to prof C. Gordon at City rd hospital for an appointment. His INR continues to fluctuate from 3.8 - 1.6 up and then done on each visitand finally got someone to agree that it needs to be between 2.5 and 3.5 due to APS and be seen weekly not every 3 weeks! and not the lower 2-3 range even though hiss notes clearly state APS. Why is it not until I go and point out the obvious any one sits up and takes notice. WHAT does it take to get someone to be on our side? My husband has had 3 strokes so just takes what he is told and walks away and it is impossible to my work situation for me to be with him on every visit. This has been a long hard upward battle but I'm hopeful we might be getting there. So thank you all for agreeing that what I thought was right and I'm not a nuisance and over concerned wife just that I want what I believe should automatically happen for all patients. We have such an unfair system in this country.
Sorry for the rant but hope others in same situation will continue to seek what they are entitled to to have a better quality of life! Good luck all. Any further advice greatly received.