Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for June 2015

Seizures

Just finished an ambulatory EEG. Seems I'm having mini seizures. Doc wants to put me in the hospital to do a epilepsy monitoring over 3-4 day period. He...

Just finished an ambulatory EEG. Seems I'm having mini seizures. Doc wants to ...

mylafont

•9 years ago

14 Replies

Red dots or blood spots

Hi all Can I ask if red dots are a part of hughes syndrome I have been getting these red blood looking dots all over my body I wasn't worried at first...

Hi all Can I ask if red dots are a part of hughes syndrome I have been getting...

spider7

•9 years ago

13 Replies

Microscopic hematuria--anyone have it?

Since being diagnosed with APS and Factor V Leiden by a hematologist a year and a half ago after having DVT several times, I joined this website and have...

Since being diagnosed with APS and Factor V Leiden by a hematologist a year and ...

mozelle

•9 years ago

8 Replies

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Travelling with APS

Hi Everyone! I am 21 years old & diagnosed with APS, I want to go travelling to Australia/New Zealand/Bali for 3-4 months. I am wondering if anyone has done...

Hi Everyone! I am 21 years old & diagnosed with APS, I want to go travelling to...

bethw

•9 years ago

11 Replies

Hughes Syndrome

Would anyone know if Dr Graeme Hughes supports patients self testing using a Co Agu check monitor? As I have been told after 15 years I slipped through the net...

Would anyone know if Dr Graeme Hughes supports patients self testing using a Co ...

charlie007

•9 years ago

13 Replies

APS or over thinking

Hello, I am new to this forum and i am looking for some advice and answers really. My mother was diagnosed with APS about 20years ago. Both my sister and I...

Hello, I am new to this forum and i am looking for some advice and answers real...

RebeccaAnn22

•9 years ago

13 Replies

Omega 3 supplements and warfarin

Just a quickie for you all, Does anyone take Omega 3 supplements and if so does it affect your INR? I'm guessing it can raise it but by how much? Reason I...

Just a quickie for you all, Does anyone take Omega 3 supplements and if so does...

MASuk10

•9 years ago

28 Replies

"MIND OVER MEDICINE "

SINCE LOSING ALL MY SIGHT WHICH IS ONE OF THE SENSATIONS WHICH IIS HARD WIRED INTO TO EVERYONE EXCEPT THOSE CHILDREN WHO ARE BORN WITH OUT SIGHT NOR......

SINCE LOSING ALL MY SIGHT WHICH IS ONE OF THE SENSATIONS WHICH IIS HARD WIRED ...

popshaw21

•9 years ago

7 Replies

livido reticularis

Hi there. I am experiencing some kind of flare of vasculitis. Was diagnosed and treated for CNSV. I have developed libidos reticularis and get it over my...

Hi there. I am experiencing some kind of flare of vasculitis. Was diagnosed and ...

Kat13

•9 years ago

7 Replies

Dry mouth

Kerstin kindly pointed me toward Xerodent tablets. Unfortunately, these are not available in Australia. I have tried both of the mouthwashes for this...

Kerstin kindly pointed me toward Xerodent tablets. Unfortunately, these are not ...

Ozchick

•9 years ago

5 Replies

Sharp pain

On the lower left side in the back of my head they are spuratic sharp pain that has been going on all day. Does anyone have a clue what this could be?

On the lower left side in the back of my head they are spuratic sharp pain that ...

Teresalee

•9 years ago

3 Replies

Trimethoprim & Warfarin

Been on warfarin for APS for about four years after being diagnosed in 2011. My recent INR is 2.5 (last Monday) I have a problem with my consultant never...

Been on warfarin for APS for about four years after being diagnosed in 2011. My ...

JPMcGee75

•9 years ago

5 Replies

Eczema tyoe rash on backs on knees

Hello everybody I hope you are all doing well. I started on warfarin on the 1st June and am wondering whether it could bear any relation to the unsightly dry...

Hello everybody I hope you are all doing well. I started on warfarin on the 1st...

Herbs77

•9 years ago

7 Replies

Availability of Plaquenil

We understand that many patients who take hydroxychloroquine under the trade name of Plaquenil have been told by their pharmacist that it has been...

We understand that many patients who take hydroxychloroquine under the trade nam...

Hidden

•9 years ago

6 Replies

A little help with symptoms

Hi, since last November I have made drastic changes to my diet. Even though it is obvious that I am not cured of APS by a long shot !!! I am definitely having...

Hi, since last November I have made drastic changes to my diet. Even though it i...

Rhian21

•9 years ago

6 Replies

Visiting the Dentist

Hi All I am new to taking Warafin (I suffer with IPAH) I have read that with mixed information as to what to do re visiting the Dentist i.e. I am probably due...

Hi All I am new to taking Warafin (I suffer with IPAH) I have read that with mi...

ppy1310

•9 years ago

3 Replies

Germany

I got a question from Germany. Do we know contacts or People or organisations with aps knowledge Greet from Holland

I got a question from Germany. Do we know contacts or People or organisations ...

sanderotter

•9 years ago

4 Replies

GP Map - UK, Wilts, Salisbury

DR. JUDITH BURNS, Salisbury Medical Practice, Fisherton House, Fountain Way, Wilton Rd, Salisbury, SP2 7FD 01722 333034...

DR. JUDITH BURNS, Salisbury Medical Practice, Fisherton House, Fountain Way, Wil...

NaggingWife

•9 years ago

2 Replies

Pet scan

Pet Scan results are in ... Apparently I have reduction in right parietal lobe and hypometabolism in the temporal lobe,has anybody else had this? Or took part...

Pet Scan results are in ... Apparently I have reduction in right parietal lobe ...

emmaj

•9 years ago

2 Replies

Sjorgens.

Hi everyone, After my episode on Monday I went to the optician to get my eyes checked and to treat myself to some new sun glasses. The last few times he's...

Hi everyone, After my episode on Monday I went to the optician to get my eyes c...

Tinythepanda

•9 years ago

6 Replies

Deep behind knee pain

Hi I have been suffering this deep aching sort of pain behind my left knee it also travels about half way down my calf, it's even there when I wake up in the...

Hi I have been suffering this deep aching sort of pain behind my left knee it al...

SharonTOsborne

•9 years ago

6 Replies

New and confused?!

Hi all. Hope you are all well. I have a long and painful medical history which I will put in below but not in too much detail. Feel free to ask questions - I...

Hi all. Hope you are all well. I have a long and painful medical history which I...

Hidden

•9 years ago

15 Replies

Meeting next year date

Does anyone know the date for the support group meeting next year. Each year I have an appointment with Prof Hughes & seem to miss the meeting by days. I would...

Does anyone know the date for the support group meeting next year. Each year I h...

designer16

•9 years ago

1 Reply

Mottled skin sore heavy wrist swollen hands pain

Is all mottled skin live do reticular is also I am o rhesus negative have IBS Raynaud's and vitiligo and past two years very photosensitive doctor said its all...

Is all mottled skin live do reticular is also I am o rhesus negative have IBS Ra...

Hidden

•9 years ago

4 Replies

Any of you have thin fragile skin from steroids and/or blood thinners?

I am on lifetime warfarin for APS and a history of stroke and multiple DVT's. I have also been taking Prednisone for over 15 years for a neuromuscular disease....

I am on lifetime warfarin for APS and a history of stroke and multiple DVT's. I ...

SheilaSparkles

•9 years ago

1 Reply

The woman who woke up with a Chinese Accent

Very interesting: http://www.bbc.co.uk/iplayer/episode/b039sm17/the-woman-who-woke-up-chinese MaryF

Very interesting: http://www.bbc.co.uk/iplayer/episode/b039sm17/the-woman-who-...

MaryF

Administrator•9 years ago

1 Reply

Prominent sulci on scan...

Hi all,hope your as well as can be, does anybody know what this would mean,or had similar on a ct scan... X

Hi all,hope your as well as can be, does anybody know what this would mean,or ha...

emmaj

•9 years ago

2 Replies

Saying hello...health update

Hello everyone, It has been 6 months now since surgery, the five incision took a very long time to heal. Ended up having shingles twice during the six months...

Hello everyone, It has been 6 months now since surgery, the five incision took a...

beccafullcircle

•9 years ago

12 Replies

Those with migraines.....

Well after being migraine free since starting warfarin in October I had the mother of all episodes. I got up yesterday morning and by 9 I could barely see out...

Well after being migraine free since starting warfarin in October I had the moth...

Tinythepanda

•9 years ago

12 Replies

Eating before INR test

Hello I am new to Warafin and currently have a test every week. In the morning. I currently do not eat or drink anything prior (except water). However, I am...

Hello I am new to Warafin and currently have a test every week. In the morning....

ppy1310

•9 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2015

Seizures

Red dots or blood spots

Microscopic hematuria--anyone have it?

Travelling with APS

Hughes Syndrome

APS or over thinking

Omega 3 supplements and warfarin

"MIND OVER MEDICINE "

livido reticularis

Dry mouth

Sharp pain

Trimethoprim & Warfarin

Eczema tyoe rash on backs on knees

Availability of Plaquenil

A little help with symptoms

Visiting the Dentist

Germany

GP Map - UK, Wilts, Salisbury

Pet scan

Sjorgens.

Deep behind knee pain

New and confused?!

Meeting next year date

Mottled skin sore heavy wrist swollen hands pain

Any of you have thin fragile skin from steroids and/or blood thinners?

The woman who woke up with a Chinese Accent

Prominent sulci on scan...

Saying hello...health update

Those with migraines.....

Eating before INR test

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