I am new to this forum and i am looking for some advice and answers really.
My mother was diagnosed with APS about 20years ago.
Both my sister and I 24 and 22 are now of an age where we understand the illness and we have been getting tested every two years since we turned 16.
Recently after finding this forum I have linked up a couple of what i though were day to day issues to something that may show im suffering with APS.
I was diagnosed with Migraines at 17 and have been put on Propanalol and Ponstan to control these, also whilst it didnt bother me at the time,I suffer from irregular periods and anemaia also and I also have a reoccuring rash that appears on my hand and legs that is purple in colour and 'road map' like. This only appears when I have been standing for more than 20mins in one position without shifting my weight and it isnt itchy just just irritating (like i need to rub them to releave a pressure) the rash and feeling goes when i sit down. All of these symptoms have been on going for the past 5 years at least.
I recently went and got tested agian and highlighted these things to my family doctor who was very understanding. He tested me and the results came back negative however he asked the specalist to check them over (were they 100% negative?) He explained to me that getting a positive result from blood tests alone is difficult, they usually look for the bloods to be positive plus a DVT and or issues with conceiving - as im only 22, I dont want to find out when im ready to have a family that I am actually positive.
He asked for me to send a picture of the rash when it appeared which i did and he said that he hadnt seen anything like it before and that it was clear it isnt an allergy or irritant, it suggests there is something not right with the circulation of blood so has refered me onto the specalist.
Im just wondering if there is anyone else out there that has APS in their family that are also in the same boat as me, and are my symptoms something that does point towards APS or if ive over thought the situation.
Thanks in advance for any advice/answers