I am on lifetime warfarin for APS and a history of stroke and multiple DVT's. I have also been taking Prednisone for over 15 years for a neuromuscular disease. As you may be aware, steroids cause many side effects, and the one I am writing you about is extremely fragile, paper thin skin. It is the worst on my legs and forearms. Something as simple as bumping into a piece of furniture gently can cause my skin to tear open... it's that bad. My forearms and the back of my hands are constantly black and blue.
If my dog brushes my leg with a toenail, it will typically puncture and rip causing a triangular shaped tear. If I get a real injury like getting cut by something like a twig, it's much worse. Last fall I merely bumped against the smooth round front of a toilet with the back of my leg and it caused a 3" long tear - the skin simply ruptured open. When I get wounds on my legs, they typically take many months to heal and require torturous wound care procedures. During those months I will suffer from horrendous pain and numerous cellulitis infections as well.
I'm just wondering if any others of you are going through something similar, and if so did you find anything to help you? Unfortunately I can never lower or stop my steroid dose nor the blood thinner. Thanks!
No miscarriages or DVT or blood clots but have confirmed APS and many other symptoms, is anyone else the same and are blood clots likely?
Pregnancy and Blood thinners
To take blood thinners or not????
Does anyone else with APS/SLE have cold/stiff/numb feet, hands and legs but DON'T have Reynaud's i.e. no skin discolouration?
Is it possible to have APS or Lupus with negative blood tests?
