Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for August 2014

Hearing Loss

Hi I was wondering if anybody could answer a couple of questions please. Has anyone with APS/lupus or both had any hearing loss? I was told today that I have...

Hi I was wondering if anybody could answer a couple of questions please. Has any...

crista1

•10 years ago

14 Replies

TED Talks - owning your body's data. Interesting watch.

Nothing specific to APS / Lupus but great food for thought about being an active patient! https://www.ted.com/talks/talithia_williams_own_your_body_s_data

Nothing specific to APS / Lupus but great food for thought about being an active...

Hidden

•10 years ago

2 Replies

HSF Patients' Day transcript now available

For those of you who prefer print to audio, our Patients' Day transcript is now available in PDF format so you can download and read it for free - thanks to...

For those of you who prefer print to audio, our Patients' Day transcript is now ...

Hidden

•10 years ago

3 Replies

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eye hemorrhage

Three days ago I had an eye hemorrhage. I kept getting a funny feeling in eye and when looked in mirror could not see the white of my eye. It was a deep...

Three days ago I had an eye hemorrhage. I kept getting a funny feeling in eye a...

mozelle

•10 years ago

4 Replies

In Urgent care this week w/oversize cyst filling itself up with blood...

Good morning everyone, this site has helped my heart and mind so often. Thank you for the input from all of you that also go through living with APS and all...

Good morning everyone, this site has helped my heart and mind so often. Thank y...

beccafullcircle

•10 years ago

12 Replies

New Drug

Hi, It's been a while since I have been on this forum, apologies for that. I was at St T's yesterday and prescribed a new drug (new to me anyway). It's...

Hi, It's been a while since I have been on this forum, apologies for that. I was...

DelH

•10 years ago

8 Replies

High Risk OBGYN experienced in APS/recommendations?

Hi all - I am due for an egg transfer tomorrow or Sunday...yay!!! 4 of our 7 little donor eggs had successful fertilization. :) I have APS and am now on...

Hi all - I am due for an egg transfer tomorrow or Sunday...yay!!! 4 of our 7 li...

Sandrapanda

•10 years ago

5 Replies

Do we need a higher INR when having heartvalvelesions and heartdysfunction and pulmonary hypertension?

Professor Hughes says in one of his books: ".........progression from early valve disease can be prevented by careful anticoagulation" I have read of a higher...

Professor Hughes says in one of his books: ".........progression from early valv...

Lure2

•10 years ago

6 Replies

Kidney & Ureter problems cont... still got nowhere ..

Hya - i posted a while back about my hospital stay in May where my kidney was inflamed and my ureter was found to be thickened, I had my biopsy done and ended...

Hya - i posted a while back about my hospital stay in May where my kidney was in...

emmaj

•10 years ago

19 Replies

Sharp stabbing pain on left side of my head. Tender scalp. Pain last seconds. I feel it off and on for about 10 minutes

I have sharp stabbing pain on the left side of my head.. Scalp is tender to touch where the pain is is located. lasting anywhere from 2 to 8 secondsoff and...

I have sharp stabbing pain on the left side of my head.. Scalp is tender to touc...

Jenny10

•10 years ago

18 Replies

Headache and asthma

I have APS and severe asthma. I've started getting these horrible headaches. Regularly. I can take few OTC pain meds due to the asthma. I'm limited to...

I have APS and severe asthma. I've started getting these horrible headaches. Re...

DannyBoy1

•10 years ago

10 Replies

New research shows how blood vessels are formed. May be helpful in understanding our condition.

Research by the Medical Research Council, sponsored by the Wellcome Trust and the BHF show that vessels are formed as a result of demand in very early life....

Research by the Medical Research Council, sponsored by the Wellcome Trust and th...

Bonnie39

•10 years ago

2 Replies

Does anyone else get severe pain in hands with no swelling?

I also get pain in other joints especially hips knees and shoulders. Doctors have put hip and knee pains down to excessive weight but have offered no...

I also get pain in other joints especially hips knees and shoulders. Doctors hav...

phoenix77

•10 years ago

11 Replies

Just a small thing

Just a small achievement but it made me feel good. When I had my stroke in 1998 my cognitive skills were severely compromised. I worked really hard and...

Just a small achievement but it made me feel good. When I had my stroke in 1998...

panda60

•10 years ago

9 Replies

Rituximab

INGLÉS Hi there I hope they are well My question is this APS someone is tested with the drug Rituximab? specialist tells me that there are good results, the...

INGLÉS Hi there I hope they are well My question is this APS someone is tested w...

Claudia65

•10 years ago

3 Replies

Who has had a stress (march) fracture to big toe or similar?

I think I my have one, off to sit and count ceiling tiles in casualty tomorrow! MaryF

I think I my have one, off to sit and count ceiling tiles in casualty tomorrow! ...

MaryF

Administrator•10 years ago

10 Replies

Self testing strips

I have just received confirmation that my GP will provide strips on prescription, after fighting for a couple of years, following my GP practice changing their...

I have just received confirmation that my GP will provide strips on prescription...

JanBad

•10 years ago

19 Replies

Taking syringes on a flight

I have phoned my airline and think I know what i am doing though they were a bit unclear. Can any of you tell me what you had to do re taking syringes of...

I have phoned my airline and think I know what i am doing though they were a bi...

stillwaiting

•10 years ago

8 Replies

Especialista en houston tx

Hola soy claudia Escribo por mi hija que fue diagnosticada hace 2 años con APS Necesito otra opinión . Alguien conoce a algún especialista en houston tx ?...

Hola soy claudia Escribo por mi hija que fue diagnosticada hace 2 años con APS N...

Claudia65

•10 years ago

11 Replies

travel insurance

Just thought I would let you know that Boots are really good. Ok I do not have a proven clot which I know puts the premium up big time but I do have to take...

Just thought I would let you know that Boots are really good. Ok I do not have a...

stillwaiting

•10 years ago

Another evening wasted in A&E

Still getting swellings on the inside of my elbows and still getting excrutiating pain at back of head (right side only) so off to A&E again last night they...

Still getting swellings on the inside of my elbows and still getting excrutiatin...

donnabrain

•10 years ago

3 Replies

Introduction and question on Rivaroxaban

Hi guys, I am new to this forum, with this being my first post. Following a P.E in Jan, I have been diagnosed with Hughes Syndrome (two positive lupus...

Hi guys, I am new to this forum, with this being my first post. Following a P.E...

IndyH

•10 years ago

17 Replies

Headaches while asleep

Hi All Does anyone else get headaches just when they are asleep? You may ask how do I know if I am asleep - I have to get up to go to the loo, so half awake...

Hi All Does anyone else get headaches just when they are asleep? You may ask h...

Elaine77c

•10 years ago

10 Replies

I have been struggling to stabilise my inr for months now. I feel so awful most of the time. I enquired

about trying fragmin injections but was told I couldn't use them as they can cause osteoporosis. I can't win. Its really getting me down can't take much more....

about trying fragmin injections but was told I couldn't use them as they can cau...

Hidden

•10 years ago

33 Replies

daughter and hughes

hi all im new to this site im writing for my daughter she is 25 and for a long time now has not been at all well i have autoimmune thyroid disease and...

hi all im new to this site im writing for my daughter she is 25 and for a long t...

Lifeback

•10 years ago

6 Replies

Enzyme protease and Nattokinese

Has anyone taken these supplements to un sticky the blood from APS?

edgewater100

•10 years ago

3 Replies

Factor Leiden V.

Good morning from east coast Canada. Wondering if anyone out there has similar issues. I have tested positive for Leiden V mutation, and although, LA, and...

Good morning from east coast Canada. Wondering if anyone out there has similar ...

danluc

•10 years ago

13 Replies

Conflicting GP advice

I had a few clots 20+years ago , was diagnosed as having APS on warfarin for 5+ years. Then consistently tested negative for all clotting disorders. I came off...

I had a few clots 20+years ago , was diagnosed as having APS on warfarin for 5+ ...

Lucky67

•10 years ago

7 Replies

Kidney Problesm, possible new diagnosis

Hi all I hope your all well at the moment it is a while since i posted - I was hospitalised wit Kidney pain in May and when they did a scan they found...

Hi all I hope your all well at the moment it is a while since i posted - I was h...

emmaj

•10 years ago

21 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2014

Hearing Loss

TED Talks - owning your body's data. Interesting watch.

HSF Patients' Day transcript now available

eye hemorrhage

In Urgent care this week w/oversize cyst filling itself up with blood...

New Drug

High Risk OBGYN experienced in APS/recommendations?

Do we need a higher INR when having heartvalvelesions and heartdysfunction and pulmonary hypertension?

Kidney & Ureter problems cont... still got nowhere ..

Sharp stabbing pain on left side of my head. Tender scalp. Pain last seconds. I feel it off and on for about 10 minutes

Headache and asthma

New research shows how blood vessels are formed. May be helpful in understanding our condition.

Does anyone else get severe pain in hands with no swelling?

Just a small thing

Rituximab

Who has had a stress (march) fracture to big toe or similar?

Self testing strips

Taking syringes on a flight

Especialista en houston tx

travel insurance

Another evening wasted in A&E

Introduction and question on Rivaroxaban

Headaches while asleep

I have been struggling to stabilise my inr for months now. I feel so awful most of the time. I enquired

daughter and hughes

Enzyme protease and Nattokinese

Factor Leiden V.

Conflicting GP advice

Kidney Problesm, possible new diagnosis

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