New Drug: Hi, It's been a while since I... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,404 members10,613 posts

New Drug

DelH profile image
DelH
8 Replies

Hi, It's been a while since I have been on this forum, apologies for that. I was at St T's yesterday and prescribed a new drug (new to me anyway). It's Hydroxychloroquine Sulphate 200mg.

Is anyone else on this, and if so did it help? I will still be warfarin and everything else, and I am hoping this will help ease the double vision, fatigue, joint pain and rash from sunlight.

I appreciate any thoughts!

Written by
DelH profile image
DelH
To view profiles and participate in discussions please or .
Read more about...
8 Replies
bevjane74 profile image
bevjane74

I've only been on it a few month and I find it helps with the fatigue slightly and my energy levels aren't as low as they were, I still get varying levels of joint pain it is early days and it does take a while for the medication to get into your system so I'm pretty positive as to what the future will bring

daisyd profile image
daisyd

Yes I am, unusual I think but in 3 days of starting it I noticed my balance improved.

I am still really tired, but just being able to walk in a straight line is fantastic for me.

Good luck hope it works for you

Elaine77c profile image
Elaine77c

It does seem to kick in regarding fatigue before it does anything for joint pain, been on it for about four months and it has helped the fatigue but not yet the joint pain. I hope they advised you to get a base line eye test and then have your eyes tested on an at least yearly basis, as one of the side effects can be a build up of something (not sure what exactly) on the retina which impacts on vision?!

Bonnie39 profile image
Bonnie39

I am now on the brand name Plaquinel. Have been on it a couple of months. It takes up to six months for it to fully work. Two months in and I feel less fatigued, but am still suffering kidney and joint problems. I am hopeful it will do more for me in time.

Yes..taking 2/daily for 4 years.....made me feel well (no Malaise and flu like symptoms) within a week of taking it...and my lab work keeps coming back "OK"....my Rheumatoloists tests me every 90 days...

no side effects that I notice....best wishes

DelH profile image
DelH

Thanks for everyone's comments. I'm hopeful this will help and certainly shows I was right to insist on a referral to St T's. My Haematologist refuses to discuss my APS and will only discuss my INR levels, which is useless.

MaryF profile image
MaryFAdministrator in reply toDelH

Be patient with it, although it did not work for me due to a nasty reaction, it is doing wonders for my young daughter, it does take a few months to get up to speed with it though. MaryF

jetjetjet profile image
jetjetjet

I agree with above i take 400 ml. a day -- it took about 5 or 6 months to really take full effects on me -- but i also take a lot of other meds and narcotic's.----- it was well worth the wait .-- it has been almost 4 years now .. give it time ---- Casey & I

Not what you're looking for?

You may also like...

New diagnostic criteria?

Hi,  I wonder if anyone can help please?  I was diagnosed with APS, approx 9 years back, on signs...
Ally7 profile image

Hospital appointment and a new problem - advice please.

Hi all, I finally got an immunology appointment for Frimley park in September. I'm quite nervous...
phoenix77 profile image

A New Year and a New Book:

The proposed book on Sero negative Hughes Syndrome will started shortly, this is to earn funds, and...
MaryF profile image
Administrator

Advise on changing drug

Please excuse my spellings i am terrible and have no spell check 🙈 Hi! I have been diagnosed with...
gemgemz profile image

New Year New Pains Why???

Hi I hope everyone has a HEALTHY NEW YEAR! I get these upper body spasms in my arms shoulders...
Debbweb01 profile image

Moderation team

See all
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.