As I posted earlier, Derek had a major CAPS event in October last year. He now has Addison's along with APS
We have found people outside the Addison's world and APS world don't "get" it. We are lucky we have a great Dr who understands what he is going through.
So I have started blogging about what it is like to live with an Addisonian, with APS and getting input from him on what it is like day to day.
He now has TWO rare conditions with symptoms that cross over. It's very hard to tell which is which.
If anyone is interested (and I won't be offended if you are not) then it is livingwithaddisons.wordpres... . I have only just started so it doesn't have a lot of info yet.
I have called it living with Addison's as that is the dominant condition even though it occurred because he had APS and had surgery.