APS Testing question

[svanhecke]

Hi all,

Have been diagnosed with Hemiplegia Migraines and my Neurologist is now telling me to see a hematologist to have further testing. Thank you to Lynn and other members for responding to me previously with very valuable data and also the name of a APS doctor near me in Northern KY. (Dr. Winkleman) I will be reaching out to his office tomorrow. My question for you is that I do need further testing. Presently I have been told the following:

LUPUS ANTICOAGULANT AND ANTIPHOSPHOLIPID ANTIBODY TESTING

single phospholipid-dependent assay is positive The IgG, IgM and IgA

anticardiolipin antibody titers were all negative.

The laboratory findings are

indeterminate, but a lupus anticoagulant should can not might excluded. Suggest rechecking a lupus anticoagulant panel on a new

specimen in 12 weeks to evaluate further.

My symptoms are the following:

1) horrible migraines w/aura (hemiplegic)seizures

2) problem pregnancies

3) Factor V Leiden

4) Fibro

5) Thyroid Disorder

Can you be positive for APS with this blood work? Has anyone out there had similar results? We are going to be looking into other past blood work to see if I have been tested for this before.

Any feedback would be extremely welcomed as I have been suffering now for over 4 plus years and my present medications are not working at all. My pain levels due to headaches are horrible!

Thanks so

[svanhecke]

Thanks so much! This really gives me the kind of support I need to push forward! I did watch the video from Patient Day of Dr. Hughes speaking about APS in 2050, but I can't seem to find the link to Prof. Rahmans' lecture that you speak of that I would really like to watch. Is there anyway you could forward me the link so that I could view the link? Thanks again! xx

[LipsNClips]

Hang in there with those terrible headaches! Sounds like you have a good plan in place and will get some answers soon!

What type of treatment have you been on for the headaches?