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Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2013

New website for doctors, re rare disease

Hi everybody - found this in the press today: Hope it turns out to be useful:...

Hi everybody - found this in the press today: Hope it turns out to be useful:.....

MaryF

Administrator•11 years ago

13 Replies

Weight Issues

Hi All, I have APS, I am overweight and have been since I was a child. I have tried every diet and calorie control I can get my hands on. I eat healthily and I...

Hi All, I have APS, I am overweight and have been since I was a child. I have tr...

katrinahug03

•11 years ago

7 Replies

COUNT DOWN ON

GETTING READY FOR THE NEXT SURGERY - { OOPS CAPITOL LETTERS }, 1 st one went good , no infection, healing very good, so 2 nd one can go forward- . spentmost...

GETTING READY FOR THE NEXT SURGERY - { OOPS CAPITOL LETTERS }, 1 st one went go...

jetjetjet

•11 years ago

7 Replies

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Prozac

Daughter and I have Hughes and Lupus and since last year she suffered from depression the consultant said he wants her to try Prozac to get Serotinin up but...

Daughter and I have Hughes and Lupus and since last year she suffered from depre...

daisy11

•11 years ago

8 Replies

rivaroxaban

any1 on rivaroxaban also does any1 know bout the new sterilsation technique that doesnt involve surgery.......

any1 on rivaroxaban also does any1 know bout the new sterilsation technique t...

rach1081985

•11 years ago

3 Replies

Newly diagnosed!

I was diagnosed with Hughes syndrome in February this year. I've had multiple PEs just over a year ago and a suspected mini stroke on Xmas day. I'm a nurse so...

I was diagnosed with Hughes syndrome in February this year. I've had multiple PE...

BobbieAnne

•11 years ago

4 Replies

Trying for another baby

I have a miscarriage at 21 weeks in 2009 and was diagnosed with APS. I then had a baby boy 12 weeks prematurely in Jan 2010 due to APS and high blood pressure....

I have a miscarriage at 21 weeks in 2009 and was diagnosed with APS. I then had ...

Gembob27

•11 years ago

3 Replies

How do we get our GP's to refer us to the correct specialist!

I am now 65 and have had polio since a baby. I had 1st PE at 24 after birth of my son. I had 5 miscarriages and 2 more PEs followed by 13 DVTs . Was put on...

I am now 65 and have had polio since a baby. I had 1st PE at 24 after birth of m...

bluebutterfly101

•11 years ago

3 Replies

Stomach Bug

Hi all, I took my warfarin dose last night at 7pm and then succumbed to a stomach bug that has gone around my kids, and I was sick at 8pm. I am assuming that...

Hi all, I took my warfarin dose last night at 7pm and then succumbed to a stomac...

StuartD

•11 years ago

7 Replies

APS and Addison's?

I am posting this in both the Addison’s forum and the Hugh’s Syndrome forum. I am just wondering if anyone out there is in the same situation. My husband...

I am posting this in both the Addison’s forum and the Hugh’s Syndrome forum. I...

Tiggercat

•11 years ago

24 Replies

How quickly can the difference that aspirin makes be noticed?

Sorry to post two questions at once! Having had a super high IGg anitbody blood test for the second time my GP recommended I start aspirin while I wait for...

Sorry to post two questions at once! Having had a super high IGg anitbody bl...

Fairypies

•11 years ago

7 Replies

Hi, I had a pulmonary embolism Sept 2012. Off warfarin now but seem to tick some boxes for Hughes syndrome. Any advice?

vine55

•11 years ago

5 Replies

Stopped plaquenil on account of tinnitus

I do really hope I have made the right decision. I had been on the plaquenil for 2 months on a very low dose and never thought my tinnitus could be affected,...

I do really hope I have made the right decision. I had been on the plaquenil for...

Jade

•11 years ago

8 Replies

Anticoagulation self-monitoring alliance

For the majority of you on warfarin, please try to take time to have a look at the ASCMA website and sign up for their newsletter: http://www.acsma.org.uk/....

For the majority of you on warfarin, please try to take time to have a look at t...

Hidden

•11 years ago

8 Replies

newly diagnosed with aps.

( sorry about the spelling) hi. i was told that i have hughes syndrome last week but looking back i thing iv had it for a long time, mu symtonms are...

( sorry about the spelling) hi. i was told that i have hughes syndrome last week...

chapman

•11 years ago

21 Replies

prominent suici??

Hi all, I saw the Dr at St Thomas' who had reviewed my MRI;s that ive had in the past and I knew about the occipital lobe infarct - but he also found evidence...

Hi all, I saw the Dr at St Thomas' who had reviewed my MRI;s that ive had in the...

emmaj

•11 years ago

2 Replies

Is it possible I still have hughes just because 1 doctor tells me I dont????

I went to a immunologist/rhemologist. Who told me it does not sound as if I have aps as I have 1 child and no clots. My cousin has the disease and ive been...

I went to a immunologist/rhemologist. Who told me it does not sound as if I have...

fredred

•11 years ago

7 Replies

Blood Tests

Hi, I had a blood test done for the glycoprotein 1 on Monday 11th March 2013 and the results still haven't come back. I had the other two tests for hughes in...

Hi, I had a blood test done for the glycoprotein 1 on Monday 11th March 2013 and...

Jaide_selby

•11 years ago

2 Replies

Diagnosis

Had 2 positive anticardiolipin tests but been told this means nothing- need 2 positive beta2 glycoprotein tests to have hughes is this true?

Had 2 positive anticardiolipin tests but been told this means nothing- need 2 po...

NBtired

•11 years ago

7 Replies

New HSF website

We are pleased to launch our new HSF website and hope that all of you find it really helpful. Thanks to everyone who made it happen. Please clear your browser...

We are pleased to launch our new HSF website and hope that all of you find it re...

Hidden

•11 years ago

21 Replies

I have recently developed a "butterfly rash".....looks like I have a bit too much blush

I will be seeing my Rheumatologist in 2 weeks.....but wondered if anyone else has developed this rash......Past blood tests have not revealed Lupus...only APS....

I will be seeing my Rheumatologist in 2 weeks.....but wondered if anyone else ha...

Hidden

•11 years ago

11 Replies

How long do gabapentin side effects take to wear off?

GP has prescribed me gabapentin for fibro pain. I've started on the smallest dose, 100mg once a day, working up to 3 times a day before we review and decide if...

GP has prescribed me gabapentin for fibro pain. I've started on the smallest dos...

Paleosooze

•11 years ago

4 Replies

Plaquenil and blood tests?

How weird! Earlier I picked up a lorry-load of drugs, including Plaquenil (that I've been taking for about 8 years) and the pharmacist asked me if I have...

How weird! Earlier I picked up a lorry-load of drugs, including Plaquenil (that...

Coppernob

•11 years ago

7 Replies

OA causes? Does it matter?

I have, as many of you know, been fighting hip arthritis for 15 years. MRI reveals that there is bone on bone places now which prompts all the docs who see...

I have, as many of you know, been fighting hip arthritis for 15 years. MRI reve...

GinaD

•11 years ago

10 Replies

GI problem-APS related???

Hi! I'm a lurker :) Since 12/24 I've been throwing up most days (I've now lost 24 lbs). I'm nausous after pretty much everything I eat and can only eat very...

Hi! I'm a lurker :) Since 12/24 I've been throwing up most days (I've now lost ...

uscglady

•11 years ago

10 Replies

What is your most difficult symptom or aspect of having Hughes Syndrome?

Dagen

•11 years ago

46 Replies

To Hughes or not to Hughes

Well, just been to see a Rheumtologist for the first time today. Didn't prepare for it by writing a history or anything - I know this is going against all the...

Well, just been to see a Rheumtologist for the first time today. Didn't prepare...

Elaine77c

•11 years ago

5 Replies

Has anyone stopped taking Clopidogrel and then started getting headaches?

I am on warfarin and just seen a Rheumatologist who has agreed that I can aim for 3-3.5 rather than 2.5 (hurrah!) but despite ever increasing doses they were...

I am on warfarin and just seen a Rheumatologist who has agreed that I can aim fo...

Elaine77c

•11 years ago

8 Replies

Symptoms "not" associated with aps have disappeared since injecting Fragmin

I have frequently experienced muscular aches and pains (all over), sharp pains in random parts of the body that rapidly migrate I.e I can feel pain in my head,...

I have frequently experienced muscular aches and pains (all over), sharp pains i...

Maybells

•11 years ago

13 Replies

will they ever find a substitute for warfaren

mergal

•11 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2013

New website for doctors, re rare disease

Weight Issues

COUNT DOWN ON

Prozac

rivaroxaban

Newly diagnosed!

Trying for another baby

How do we get our GP's to refer us to the correct specialist!

Stomach Bug

APS and Addison's?

How quickly can the difference that aspirin makes be noticed?

Hi, I had a pulmonary embolism Sept 2012. Off warfarin now but seem to tick some boxes for Hughes syndrome. Any advice?

Stopped plaquenil on account of tinnitus

Anticoagulation self-monitoring alliance

newly diagnosed with aps.

prominent suici??

Is it possible I still have hughes just because 1 doctor tells me I dont????

Blood Tests

Diagnosis

New HSF website

I have recently developed a "butterfly rash".....looks like I have a bit too much blush

How long do gabapentin side effects take to wear off?

Plaquenil and blood tests?

OA causes? Does it matter?

GI problem-APS related???

What is your most difficult symptom or aspect of having Hughes Syndrome?

To Hughes or not to Hughes

Has anyone stopped taking Clopidogrel and then started getting headaches?

Symptoms "not" associated with aps have disappeared since injecting Fragmin

will they ever find a substitute for warfaren

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