I was diagnosed with Hughes syndrome in February this year. I've had multiple PEs just over a year ago and a suspected mini stroke on Xmas day. I'm a nurse so had a very basic knowledge of Hughes syndrome but have only just plucked up the courage to look a bit deeper into it! It all looks very scary! It's so relieving to have a reason for feeling tired, frequent headaches and not remembering where I put my car keys two minutes before!
Thankfully, I was lucky to have a little girl five years ago was anyone else a bit daunted by all the 'could happens'?