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Hughes Syndrome APS Forum

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Has anyone contacted the doctors who deal with Hughes Syndrome directly (without a referral) in the Toronto & area? Please, please help!

john1969 profile image
6 Replies

I'm finding it extremely difficult to get a doctor who specializes in Hughes Syndrome in the Toronto area. My family doctor will not give me a referral - I'm at a loss and I'm now experiencing worse and more frequent symptoms. Can I call the clinic and make my own appointment at Mount Sinai or Toronto General?

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john1969 profile image
john1969
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6 Replies
Skyllark profile image
Skyllark

eh - the only doc I know in the Tononto area is Dr. Crawthers in Hamilton... there should be a Dr. in Toronto West. - My wife deals with doctors in the Kingston area... its really hard to find a doctor in Canada that really knows alot about Hughes.

john1969 profile image
john1969 in reply toSkyllark

Thank you so much for your answer. How were you able to get in to see these doctors? Can I contact them without a referral from my family doctor? Thank you do much off your help.

hutchchrid profile image
hutchchrid

Hello, I do know a highly regarded Rheumatologist at the University of Toronto. She will know exactly whom and where you need to be seen. We were co-investgators on clinical research projects. If you answer me by email, I can talk to you. I live in the States, but my plan allows me to call Canada. I'd be pleased to give you some help. Don't hesitate to contact me.

Take care,

Christina

hutchchris08@yahoo.com

MaryF profile image
MaryFAdministrator in reply tohutchchrid

Great! Mary F x

hasmoxie2 profile image
hasmoxie2

Try going to the APS foundation of America website - someone there might be able to help you. There might be some from Canada on that site who might know. :)

debi in Fl w APS

MaryF profile image
MaryFAdministrator

May I suggest you have a look at the contact, bottom left... ring and see if they can advise on somebody closer to home, this is a very useful and developing network! apsaction.org/

Mary F x

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