Pelvic Surgery: Hi I'm new. Has... - Hughes Syndrome A...

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Pelvic Surgery

anje profile image
anje
5 Replies

Hi I'm new. Has anyone had pelvic surgery and then found things got worse e.g. other symptoms started to crop up.

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anje profile image
anje
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5 Replies
paddyandlin profile image
paddyandlin

Hi Anje,

Welcome to the group I hope your surgery went ok, i have not had that type of surgery but i have had other surgery appendix removed and found that it has made things worse with my recovery from surgery even when i had wisdom tooth found that my healing time and the wound was longer and sensative to the touch.

Paddy

jessielou profile image
jessielou

Hi anje

welcome n glad you found us. Although I've had symptoms, miscarriages and clots in the past. everything got worse after having hysterectomy. Took a long time to recover too.

Maybe a trauma can trigger a worsening of symptoms.

Hope you well today.

Take care gentle hugs sheena xxxxxxxxx :-) :-) :-)

MaryF profile image
MaryFAdministrator

Any surgery I have had over the years has made me extremely unwell. I had to stay in for an extra two weeks, after my first baby was born 22 years ago, due to severity of lack of healing an infection for 5 stitches., Only my insistence of an infrared machine being delivered to the ward helped that along. Wisdom teeth, put my in hospital for weeks due to severity of infection and lack of healing. Removal of dermoid cyst caused no specific infection and bleeding and the need for another operation! This seems fairly typical to me M F x

whynotme profile image
whynotme

Hi Anje, Whenever I stop to think of " When did I start having my mobility and balance problems?" the answer is always...after my vag hysterectomy. Before that I was lifting rocks and raking in the garden, hoisting my 5 yr old around and other demanding tasks. Sure I suffered a sore back but that was the price I paid. After a few visits to the Chiropracter I started having numbness in my right leg even dragging it as I walked. I thought..could I have MS? Of course that's the diagnosis I landed up with but I will always wonder if I didn't in fact have a mini stroke, chiropracter caused. Funny thing the leg got feeling back but it still is weak and I limp. My MS is 'atypical' and I am almost certain it is APS but my titer has only been 22 and 19. I am most likely going to London next year to be seen by the experts. Not only for myself but 2 other sisters with serious symptoms. Anyone have resonable accomodations to offer? We'd be willing to pay for them. Might as well support fellow APS'ers.

Anyone have any idea of how long I would need to be in London? It was also mentioned to me that because I am Canadian and as a member of the Commonwealth, I might be eligible to receive healthcare in England at no cost as it is here in Canada...Any thoughts? Thanks, Dar

anje profile image
anje

Thank you everyone. Have inherited this condition from my mother. Always had migraine and memory blanks as a child. After hysterectomy I have arterial and vascular disease, particularly in legs, imbalance, TIA's, angina attack,tingling and numbness,not so many migraines since being put on Clopidogrel. Am amazed at the damage this condition can do to the body. What's the future - genetic engineering, better medication? I think there needs to be more awareness and publicity about this condition as I feel there are a lot more people out there.

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